Join Hope for HIE on Thursday, April 3rd, at 11:30 AM ET for a LIVE Q&A with Allison Moise, Peer Support Coordinator & Clinical Trial Peer Support Lead, as she discusses her journey with HIE and how it has shaped her passion for peer support and advocacy. In this session, she will: 📌 Share her growth into her roles at […]
Join Hope for HIE on Thursday, April 3rd, at 2:00 PM ET for a LIVE Q&A with Dr. Monica Arroyo, pediatric neurologist, as we explore the many causes of HIE. In this session, she will: 📌 Provide an overview of the different causes of HIE, including both sentinel and non-sentinel events 📌 Discuss how factors during birth, such as Sudden […]
Join Hope for HIE on Thursday, April 3, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis). ➡️ In this closed Zoom meeting experience, led by our certified social worker, Jen, and facilitated by two of Hope’s Peer Support Mentors, Lynn and Kara, families will […]
Join Hope for HIE on Thursday, April 10, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE, either at birth or in childhood, are invited to participate in this support group. ➡️ In this closed Zoom meeting led by our certified social worker, […]
Come Hustle for Hope in Warrington, PA, and 5K Your Way! Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! 📌 Host: David Ford 📌 Location: […]
Come Hustle for Hope in Charlotte, NC, and 5K Your Way! Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! 📌 Hosts: Mikaela Maddock, Gwendolyne Miller, […]
Come Hustle for Hope in Madison, WI, and 5K Your Way! Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! 📌 Hosts: Kacie Miller and Sarah […]
Come Hustle for Hope in Albuquerque, NM, and 5K Your Way! Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! 📌 Host: Ryann Sherman 📌 Location: […]
Come Hustle for Hope near Kansas City, KA/MO, and 5K Your Way! Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! 📌 Host: Sierra Lairson 📌 […]
Join Hope for HIE on Monday, April 14, at 12:00 PM ET for our video support group designated for extended family members of children impacted by HIE. ➡️ This closed Zoom meeting, led by our certified social worker, Jen, and facilitated by Peer Support Mentor, Carol, provides a supportive space for grandparents, aunts, uncles, and other family members to connect, […]
Join us on April 15 at 12:00 PM ET for a webinar on Optimizing Ethical Research: Implementing Ongoing Consent Models in Neonatal Studies, hosted by CHEER (Canadian Collaboration for Child Health: Efficiency and Excellence in the Ethics Review of Research). Learn about the ethics behind neonatal clinical trials and integrating patient families in study design! 🔗 Register: Tinyurl.com/CHEERWebinar2025
Join Hope for HIE on Wednesday, April 16th, at 2:00 PM ET for a LIVE Q&A with Dr. Terrie Inder, neonatologist and Director of the Center for Neonatal Research at CHOC, as we explore the role of MRI in understanding HIE. In this session, she will: 📌 Explain how MRI is used to assess brain injury in HIE, including timing […]
Join Hope for HIE on Thursday, April 17, at 12:00 PM ET for our video support session designated for HIE moms navigating another pregnancy after HIE. ➡️ Led by our certified social worker, Jen, and facilitated by one of Hope’s Peer Support Mentors, Kate, this group will engage families in a safe space to discuss: 🎯 Managing the trauma of […]
Come Hustle for Hope on your Peloton Bike and 5K Your Way! Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! 📌 Hosts: Deanna Bryan and […]
Join Hope for HIE on Tuesday, April 22nd, at 1:00 PM ET for a Q&A with Dr. Elizabeth Sewell, Neonatologist and Specialist in Neonatal-Perinatal Medicine, as we break down the critical steps in the diagnosis and immediate care of babies with HIE. In this session, Dr. Sewell will: 📌 Explain APGAR scores and what they reveal about a baby's condition […]
Hope for HIE will once again be attending the Pediatric Academic Society meeting, will have a booth in the advocacy area, is represented in presentations by Hope for HIE's Executive Director, and posters that will be on display and presented in collaborative work with our partners. Stay tuned on Hope for HIE's social media channels to stay updated with the […]
Come Hustle for Hope in Oakdale, PA, and 5K Your Way! Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! 📌 Host: Amanda Pegher 📌 Location: […]
Come Hustle for Hope near Chicago, IL, and 5K Your Way! Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! 📌 Hosts: Allison Spiaser-Pineda, Rebecca BurWei, […]
ome Hustle for Hope in Aurora, CO, and 5K Your Way! Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! 📌 Hosts: Susanne Atwell-Keister, Jasmin Villalvazo, […]
Come Hustle for Hope in Sparks, NV, and 5K Your Way! Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! 📌 Host: Jasmin Taylor 📌 Location: […]
Come Hustle for Hope in Bristol, RI, and 5K Your Way! Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! 📌 Hosts: Nicole Allen & Michelle […]
Join Hope for HIE on Monday, April 28th at 12:00 PM ET for a LIVE Q&A with Dr. Melisa Carrasco McCaul from the Wisconsin TREES Lab to learn about Virtual A2 — a fun, play-based learning booster designed to support babies (6-12 months) born with HIE who may need extra developmental help to ensure school readiness. In this session, she […]
Join Hope for HIE on Tuesday, April 29, at 12:00 PM ET for our video support group session for parents and legal guardians of children with HIE to discuss helpful ways to navigate and cope with additional diagnoses that arise after an HIE diagnosis. ➡️ This closed Zoom meeting, led by Hope for HIE's certified social worker, Jen, and peer […]
Join Hope for HIE on Tuesday, April 29th at 2:00 PM ET for a LIVE HIE Peer Perspectives Panel where Betsy Pilon, Executive Director of Hope for HIE, Nicole Carrillo, Peer Support Mentor, and Sara Berg, HIE Parent, will explore how therapeutic approaches for HIE have evolved over the years and what that means for families today. In this session, […]
Join Hope for HIE on Wednesday, April 30th, at 2:00 PM ET for a LIVE Child Life Q&A with Annie Gunning, CCLS, as she provides a virtual tour of our SOAR and SuperSibs support programming on our new online platform! In this session, Annie will: 📌 Guide you through our SOAR and SuperSibs programs, designed to support children with HIE […]
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