HIE Awareness Month
Join us for 2024's global HIE Awareness Month -- TRANSFORMING HOPE. We have many ways to get involved. Check out HIEawarenessmonth.com!
Join us for 2024's global HIE Awareness Month -- TRANSFORMING HOPE. We have many ways to get involved. Check out HIEawarenessmonth.com!
We are excited to HIElight the global HIE advocacy community. Started by Peeps - HIE in the UK, HIE Awareness Day asks the big question.... have you #HeardofHIE? Hope for HIE has been connecting the global HIE community since 2010 & now connects over 10,000 families worldwide! We are stronger together!
Join Hope for HIE on Thursday, April 4, at 8:00 p.m. ET for our video support group session, designated for parents and legal guardians who are NEW TO HIE (within one year of diagnosis). ➡️ In this closed Zoom meeting led by Hope for HIE's licensed social worker, Haley, and facilitated by one of our peer mentors – Nicole C. – […]
Join Hope for HIE on Friday, April 5, at 11:00 am ET as Dr. Eric Peeples, a Neonatologist at Children’s Nebraska, discusses how we can harness AI to help support and educate families facing HIE. Specifically, he'll explore: 📌 How AI tools like ChatGPT are being used for clinicians and families 📌 How we can build more accessible education by […]
Join Hope for HIE on Tuesday, April 9, at 1 p.m. EST as Dr. Latrice Dowtin, a mental health professional specializing in trauma populations and one of Hope for HIE's Medical Board members, joins us to provide tailored insights and strategies to assist parents of children with HIE as they navigate challenging circumstances. Specifically, she'll explore: 📌 Strategies for parenting […]
We love to celebrate our Super Sibs! Did you know we have a program specifically for them, broken up by age cohorts? Super Sibs enrolled in the program receive quarterly activities, peer support and more coordinated by our Child Life specialist, Annie Gunning, CCLS. Want to learn more? Head to HIE.SUPPORT and check out our Super Sibs tab!
Join us for a day dedicated to our amazing HIE Super Sibs. You can learn more about our Super Sibs support program by visiting HIE.support.
Join Hope for HIE on Wednesday, April 10th at 11:00 AM EST for the next installment of the HIE Peer Perspective Series, where we'll discuss how to navigate HIE and Autism. ➡️ This closed Zoom support session is led by Hope for HIE’s licensed social worker, Haley, and is facilitated by dedicated members of our community – Crystal F. and […]
Join us on Wednesday, April 10 at 12:00 p.m. ET, as Annie Gunning, Hope for HIE’s certified child life specialist, discusses family advocacy —how to advocate for yourself, your medically complex child, and their siblings. Specifically, we'll explore: 📌 Strategies for balancing your well-being and needs with those of your child's 📌 Effective, advocacy-based strategies for communicating with your child's […]
Join Haley Thomas, LMSW, for a dedicated event for NICU professionals including social workers, nurses, physicians and all who provide support and care for HIE babies and their families. Haley will troubleshoot some of the most common barriers to connecting families to support, bridge family perspectives, and take your questions on things like "what is the best time to connect […]
Join Hope for HIE on Thursday, April 11 at 8:00 p.m. ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE, either at birth or in childhood, are invited to participate in this support group. ➡️ In this closed Zoom meeting experience led by Hope for HIE's […]
IT'S TIME TO HUSTLE FOR HOPE! On April 13th, join Hustle Host Erica Hicks and other community members for a Hustle for Hope Peloton Tread session! 📌 Starting at 10:00 AM PST, take this 30-minute Run with Adrian that aired on 12/16/22: TinyURL.com/HustleforHopePelotonRun 📌 Be sure to add #HustleForHope5K to your Peloton profile before you begin! HOW TO REGISTER: 📌 […]
IT'S TIME TO HUSTLE FOR HOPE! On April 13th, join Hustle Host Erica Hicks and other community members for a Hustle for Hope Peloton Bike session! 📌 At 10:40 AM PST, take this 20-minute Classic Rock Ride with Emma that aired on 12/16/21: TinyURL.com/HustleforHopePelotonRide 📌 Be sure to add #HustleForHope5K to your Peloton profile before you begin! HOW TO REGISTER: […]
IT'S TIME TO HUSTLE FOR HOPE! We are hosting an in-person event at Challenge Grove Park (Jake's Place) on Sunday, April 14th from 10:30 AM to 1:00 PM EST in Cherry Hill, NJ -- just outside of Philly! Complete the 5K YOUR way and meet local families along the way! HOW TO REGISTER: 📌 Starting February 15th, you can register […]
Join Hope for HIE on Monday, April 15 at 12:00 p.m. ET for our video support group session where we'll be discussing helpful ways to navigate social media. ➡️ In this closed Zoom meeting led by Hope for HIE's licensed social worker, Haley, and facilitated by one of our peer mentors – Lynn G. – families will be engaged in a […]
Join Hope for HIE on Tuesday, April 16, at 2 p.m. EST, as Dr. Danielle Barber offers valuable insights into how harnessing data can drive meaningful progress in understanding and managing HIE. Specifically, she'll explore: 📌 The state of HIE research and data related to long-term outcomes 📌 How Hope for HIE is working to build a registry 📌 What […]
Join Hope for HIE on Tuesday, April 16 at 8:00 p.m. ET for our video support group designated for our foster and adoptive parents of children with HIE. ➡️ This closed Zoom session is peer-led by one of Hope for HIE’s Peer Support Mentors – Stephanie L.-- who will help lead families in a safe space of support, healing, and […]
IT'S TIME TO HUSTLE FOR HOPE! We are hosting an in-person event at Red Tailed Hawk Park on Saturday, April 20th from 9 AM to 12 PM MST in Aurora, Colorado! Complete the 5K YOUR way and meet local families along the way! HOW TO REGISTER: 📌 Starting February 15th, you can register specifically for this in-person event on our […]
IT'S TIME TO HUSTLE FOR HOPE! We are hosting an in-person event at Lions Pride Park in Chalfont, PA on Saturday, April 20th from 10 AM to 12 PM EST. Complete the 5K YOUR way and meet local families along the way! HOW TO REGISTER: 📌 Starting February 15th, you can register specifically for this in-person event on our registration […]
Join Julie Keon, RSSW, Grief Counselor, Life-Cycle Celebrant, and author of "What I Would Tell You: One Mother's Adventure with Medical Fragility," as she leads us in a virtual ceremony to honor the children in our community whose lives reached completion in this past year. Through words and ritual, Julie will guide us in remembering each one; never to be […]
IT'S TIME TO HUSTLE FOR HOPE! We are hosting an in-person event at Sparks Marina Park on Sunday, April 21st from 8:30 AM - 12:30 PM PST in Sparks, Nevada! Complete the 5K YOUR way and meet local families along the way! HOW TO REGISTER: 📌 Starting February 15th, you can register specifically for this in-person event on our registration […]
IT'S TIME TO HUSTLE FOR HOPE! We are hosting an in-person event at Rotary Park on Sunday, April 21st from 11:00 AM to 1:00 PM EST near Detroit, MI! Complete the 5K YOUR way and meet local families along the way! HOW TO REGISTER: 📌 Register specifically for this in-person event on our registration site: TinyURL.com/HustleforHope📌 Visit the event page […]
Join Hope for HIE on Wednesday, April 24, at 12 p.m. EST, as Dr. Mark Scher, Professor of Pediatrics and Neurology at Case Western Reserve University School of Medicine, explores the various causes and misperceptions of HIE. Specifically, he’ll explore: 📌 Understanding the causes and risk factors associated with HIE 📌 Exploring the mechanics of fetal development and how he […]
Join us in celebrating HIE Grandparent & Family Support Day!
IT'S TIME TO HUSTLE FOR HOPE! We are hosting an in-person event at Donaldson Park on Saturday, April 27th from 8:30-11:30 AM EST in Imperial, Pennsylvania! Complete the 5K YOUR way and meet local families along the way! HOW TO REGISTER: 📌 Starting February 15th, you can register specifically for this in-person event on our registration site: TinyURL.com/HustleforHope 📌 Visit […]
IT'S TIME TO HUSTLE FOR HOPE! We are hosting an in-person event at the Dollard des Ormeaux Civic Center on Saturday, April 27th from 9:00 AM-12:00 PM EST in Dollard des Omeaux, Quebec, Canada! Complete the 5K YOUR way and meet local families along the way! HOW TO REGISTER: 📌 Register specifically for this in-person event on our registration site: […]
IT'S TIME TO HUSTLE FOR HOPE! We are hosting an in-person event at Frame Park Riverwalk on Saturday, April 27th from 10 AM to 12 PM CST. Complete the 5K YOUR way and meet local families along the way! HOW TO REGISTER: 📌 Starting February 15th, you can register specifically for this in-person event on our registration site: TinyURL.com/HustleforHope 📌 […]
IT'S TIME TO HUSTLE FOR HOPE! We are hosting an in-person event at Cantine Memorial Field in Saugerties, NY on Sunday, April 28th from 8:00 AM - 1:00 PM EST. Complete the 5K YOUR way and meet local families along the way! HOW TO REGISTER: 📌 Starting February 15th, you can register specifically for this in-person event on our registration […]
IT'S TIME TO HUSTLE FOR HOPE! We are hosting an in-person event at Colt State Park on Sunday, April 28th from 10:00 AM - 12:30 PM EST in Bristol, Rhode Island! Complete the 5K YOUR way and meet local families along the way! HOW TO REGISTER: 📌 You can register specifically for this in-person event on our registration site: TinyURL.com/HustleforHope […]
Join Hope for HIE on Monday, April 29, at 2 p.m. EST as Dr. Kenji Cunnion, Dr. Nikki Robertson, Dr. Lina Chalak, and Dr. Brian Kalish discuss the importance of fostering a community culture of research and provide research developments and updates in their respective fields: 📌 Dr. Kenji Cunnion serves as the Chief Medical Officer at ReAlta Life Sciences, one […]
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