HIE is the second leading cause of Infantile Spasms, a rare type of epilepsy that requires quick diagnosis and frontline treatments. The onset of Infantile Spasms is considered a medical emergency. We have developed comprehensive resources, in conjunction with the Infantile Spasms Action Network, to better educate our families, especially those in the first year of their HIE journey. Learn […]
Meet Vanessa Zinke, LCSW, Hope for HIE's newly appointed social worker, and learn more about Hope for HIE's commitment to building out support programs, such as weekly video support groups, a comprehensive peer support mentor program for newly diagnosed and new to loss families, and her experience as a NICU social worker. This event takes place LIVE! on Hope for […]
VIDEO SUPPORT GROUP STARTING FOR NEWLY DIAGNOSED FAMILIES (those within the first year of diagnosis) Parents and legal guardians of HIE children within their first year of diagnosis are invited to participate in our monthly Newly Diagnosed support video call. Led by Hope for HIE's social worker, Vanessa, families will be engaged in a space of healing and hope, no […]
VIDEO SUPPORT GROUP STARTING FOR LOSS FAMILIES (those who have lost their children due to HIE) Parents and legal guardians who have lost their children due to HIE, either at birth or in childhood, are invited to participate in our monthly support group. Led by Hope for HIE's social worker, Vanessa, families will be engaged in a space of support, […]