Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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2023 Hope by the Beach Registration

Join up with other HIE moms to connect, relax and learn together by the beach in beautiful St. Pete Beach, FL. We are excited to restart in-person events, and hope you can make it! Registration ends April 1st, so don't miss out! Learn more and register below: Register Now

Measuring Clinical Benefit in Neonatal Randomized Clinical Trials: Challenges & Opportunities

Hear from clinicians, researchers, industry and patient advocacy organizations -- including Hope for HIE's Executive Director, Betsy Pilon, at the Duke Margolis Center for Health Policy event, in conjunction with the FDA. This event will be held online via Zoom, or in-person in Washington, DC at the National Press Club. Learn more, or register, below: Learn More

HIE Awareness Month

April is HIE Awareness Month! Download our comprehensive toolkit, calendar of events, and opportunities to dig into advocacy, awareness, education and support to improve the quality of life for children and families impacted by neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy. Learn More

Live Q&A: HIE Overview and Research Updates with Dr. Pia Wintermark

JOIN US LIVE FOR AN HIE OVERVIEW AND RESEARCH UPDATE! On Wednesday, April 5 at 10:00 am EST, Dr. Pia Wintermark, neonatalogist at Montreal Children’s Hospital and associate professor of neonatal neurology at McGill University, will help us kick off our first Q&A for HIE Awareness Month by reviewing the basics of HIE and relevant updates in the field of […]

NICU Lived Network Social Media Q&A

Betsy Pilon will be interviewed on the NICU Lived Experience platform to discuss how as parents in Hope for HIE, we've been able to advocate to move forward research for HIE in the NICU and beyond. You can find NICU Lived Network across social media: @NICUlivednetwork.


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