Betsy Pilon will be interviewed on the NICU Lived Experience platform to discuss how as parents in Hope for HIE, we've been able to advocate to move forward research for HIE in the NICU and beyond. You can find NICU Lived Network across social media: @NICUlivednetwork.

Join us for a Newborn Brain Society Webinar, partnering with Patient Advocacy Organizations! Please make sure you register for the webinar on our website!     https://us02web.zoom.us/webinar/register/WN_nMIHNkg9RcCRJ1KLVoaQnA  

Hope for HIE’s Super Sibs have a unique experience and we can’t wait to share some of their stories and celebrate them!

JOIN OUR LIVE Q&A ON MANAGING GUILT  Join us LIVE on Tuesday, April 11 @ 1:00 pm EST to discuss guilt and how to manage it with our licensed social worker, Vanessa Zinke! Our conversation will encompass:  ➡️ What it means to experience guilt in the HIE community  ➡️ The various pathways of guilt management  ➡️ How to communicate your […]

This is a video support group starting for loss families. Parents and legal guardians who have lost their children due to HIE, either at birth or in childhood, are invited to participate in our monthly support group. Led by Hope for HIE’s social worker, Vanessa, families will be engaged in a space of support, connecting with others to build connections. These events […]