Join up with other HIE moms to connect, relax and learn together by the beach in beautiful St. Pete Beach, FL. We are excited to restart in-person events, and hope you can make it! Registration ends April 1st, so don't miss out! Learn more and register below: Register Now
April is HIE Awareness Month! Download our comprehensive toolkit, calendar of events, and opportunities to dig into advocacy, awareness, education and support to improve the quality of life for children and families impacted by neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy. Learn More
JOIN US LIVE FOR AN HIE OVERVIEW AND RESEARCH UPDATE! On Wednesday, April 5 at 10:00 am EST, Dr. Pia Wintermark, neonatalogist at Montreal Children’s Hospital and associate professor of neonatal neurology at McGill University, will help us kick off our first Q&A for HIE Awareness Month by reviewing the basics of HIE and relevant updates in the field of […]
Betsy Pilon will be interviewed on the NICU Lived Experience platform to discuss how as parents in Hope for HIE, we've been able to advocate to move forward research for HIE in the NICU and beyond. You can find NICU Lived Network across social media: @NICUlivednetwork.
Join us for a Newborn Brain Society Webinar, partnering with Patient Advocacy Organizations! Please make sure you register for the webinar on our website! https://us02web.zoom.us/webinar/register/WN_nMIHNkg9RcCRJ1KLVoaQnA
Hope for HIE’s Super Sibs have a unique experience and we can’t wait to share some of their stories and celebrate them!
JOIN OUR LIVE Q&A ON MANAGING GUILT Join us LIVE on Tuesday, April 11 @ 1:00 pm EST to discuss guilt and how to manage it with our licensed social worker, Vanessa Zinke! Our conversation will encompass: ➡️ What it means to experience guilt in the HIE community ➡️ The various pathways of guilt management ➡️ How to communicate your […]
This is a video support group starting for loss families. Parents and legal guardians who have lost their children due to HIE, either at birth or in childhood, are invited to participate in our monthly support group. Led by Hope for HIE’s social worker, Vanessa, families will be engaged in a space of support, connecting with others to build connections. These events […]
Wear your favorite HIE Awareness Month or HIE swag, share it via social media, and encourage your support system to join in and wear theirs, too! Want to take it a step further? Spread some spirit and appreciation for your local NICU or medical team!
The race can be completed anytime from April 1st through May 31st! Grab some friends and family, pick a time and place, or attend one of our in-person events to share support, awareness, and advocacy for children and families impacted by HIE! Registration Link: Tinyurl.com/HustleforHope General Registration ends tonight at 11:59 pm!
IT'S TIME TO HUSTLE FOR HOPE! Our community members are hosting an in-person event at the Pavilion at Joseph E. Hanusey III Community Park on April 15th from 10:00 am to 12:00 pm! Complete the 5K YOUR way and meet local families along the way! Registration: You can register specifically for this in-person event on our registration site: tinyurl.com/HustleforHope If you've […]
IT'S TIME TO HUSTLE FOR HOPE! Local community members are hosting an in-person event at "The Den" at Maple Valley's Community Center on April 15th from 2:00 pm to 5:00 pm! Complete the 5K YOUR way and meet local families along the way! Registration Details: You can register specifically for this in-person event on our registration site: tinyurl.com/HustleforHope If you've already […]
Join us as we give an update about the work Hope for HIE has been engaged in partnering with ReAlta Life Sciences for an upcoming clinical trial for neonatal HIE. Hear from one of the co-discovering scientists, Dr. Kenji Cunnion, about the history of advancing this research, the magic of discovery, and how partnership with organizations like Hope for HIE […]
Each year on April 20th, we recognize, remember, mourn, and honour our HIE children who have passed away. We honor their families and their memories through a worldwide wave of light.
Join us on Thursday, April 20th, for Hope for HIE's rescheduled virtual support group session for parents and legal guardians who are NEW TO HIE . Led by Hope for HIE's licensed social worker, families will be engaged in a space of healing and hope, no matter where their journey may take them, talking with others to build connections and […]
JOIN OUR LIVE Q&A ON THE BENEFITS OF PHYSICAL THERAPY AND EARLY INTERVENTION SERVICES! Join us LIVE on Friday, April 21 @ 6:30 pm EST, as Ashley Fielding, Pediatric Physical Therapist and HIE parent, discusses the benefits of receiving physical therapy and other early intervention services! Specifically, she’ll review the following: ➡️ The importance of early intervention services in the […]
IT'S TIME TO HUSTLE FOR HOPE! Local community members are hosting an in-person event from 10 AM to 12 PM on April 22nd at Pavilion #1 at Rotary Park in Livonia, MI. Complete the 5K (ish) YOUR way on the trails, enjoy the new accessible playground so EVERYONE can play, and meet local families! Pack a picnic and stick around […]
IT'S TIME TO HUSTLE FOR HOPE! Local community members are hosting an in-person event at the Boat Launch at West Rivers Edge on April 22nd from 2:00 pm to 5:00 pm! Complete the 5K YOUR way and meet local families along the way! Registration Details: You can register specifically for this in-person event on our registration site: tinyurl.com/HustleforHope If you've already […]
IT'S TIME TO HUSTLE FOR HOPE! Local community members are hosting an in-person event at Colt State Park on April 23rd from 9:30 am to 11:30 am! Complete the 5K YOUR way and meet local families along the way! Registration Details: You can register specifically for this in-person event on our registration site: tinyurl.com/HustleforHope If you've already registered for the […]
IT'S TIME TO HUSTLE FOR HOPE! Local community members are hosting an in-person event at Cantine Memorial Field in Saugerties, NY, on April 23rd from 10:00 am to 12:00 pm! Food trucks, raffles, and more fun will take place at the venue until 3:00 pm! Complete the 5K YOUR way and meet local families along the way! Registration Details: You […]
Grandparents and extended family are incredibly important to our HIE children. Often, they step into critical caregiver roles, and love on our children like no other. They also have to process grief and trauma that comes along with their experience, so today we want to highlight their involvement, their experiences, and their stories.
Hope for HIE will be meeting and networking with the neonatology community at the Pediatric Academic Societies meeting, one of the largest academic conferences, engaged with researchers and clinicians, bringing the unmet needs of the HIE community forward.
Come meet local Hope for HIE families for a playground meet up at the Rosedale Playground, an inclusive playground at the Rosedale Community Center! April is also HIE awareness month, so it will be a great time to get together!
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