- Who We Are
- What is HIE?
- For Parents
- For Clinicians & Partners
- Get Involved
- HIElights of Hope
Michelle’s HIE journey has come with more than its fair share of obstacles—not only does her daughter, Briana, have a severe outcome, but she has also had to navigate the world of taking care of a medically complex child as a single mother. Yet, while there were days where Michelle just felt too alone, and everything seemed too overwhelming to […]
“Never worry about the past, it brings tears. Don’t think too much about the future, it brings fears. Live in the present moment with a smile, it brings cheers!” -Ravi V. Melwani Tara and Matt have four children, Lyla, Wyatt, Joy, and Myles. Lyla, their eldest, is their HIE daughter. Before Lyla was born in 2011, and even for the […]
Katherine lives with her husband, Caleb, and their two children, Caroline and Cohen, in coastal Virginia. Caroline is five years old, while Cohen, Katherine’s son with HIE, is three. Up until Cohen was born, there was no indication that he would be anything but perfectly healthy. Yet, with his birth in September 2018, the unanticipated came to life. A week […]
Katie lives in Virginia with her husband, Robbie, and her four children. Her three daughters are ten, three, and one and a half, and her son is six. Jolene, her youngest, is her HIE baby. During her pregnancy with Jolene, Katie was confident that she would be born healthy and full of life like her older three children. Everyone was […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.