Many HIE community members are no strangers to guilt, which is one of the most common emotions people face in the aftermath of trauma. Whether it’s guilt about not doing enough to prevent HIE, or feelings of blame towards oneself or others, managing these complex emotions can be a significant challenge. Fortunately, we held a live Q&A with our licensed […]
Meet Irene Adjetey, one of our HIE Awareness Ambassadors from Accra, Ghana. What is your story and connection with HIE? Evangel is my second child born on December 3, 2019. It was on that faithful day my life, and that of my son, changed completely. My labour lasted for about six hours and it was a very painful one. Finally, […]
Meet Jennifer Conn, one of our HIE Awareness Ambassadors from York, Pennsylvania. What is your story and connection with HIE? I am the mother of a 3.5 year old girl with HIE. I had a very healthy pregnancy. Everything was perfect until the night of my due date when Evelyn went from head down to breech. From that day, until […]
What is a Super Sib? It’s a sibling to a baby or child with HIE – Hypoxic Ischemic Encephalopathy, across any outcome or impact. Sometimes our Super Sibs are asked to take on a lot, go with a lot, go without a lot, and work through their own feelings of being a sibling to a child with disabilities, or have […]
April marks the beginning of HIE Awareness Month, and what better way to kick off our campaign than with a live Q&A with Dr. Pia Wintermark – a renowned pediatrician and neonatologist at Montreal Children’s Hospital – about important HIE updates in the field? If you missed her Q&A, no worries! We took notes, and like any good partner, we’re […]
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