When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting. After months of eager anticipation, the day finally arrives. You […]
We are excited to share the 2021 Hope for HIE Impact Report: Interactive Document: Printable PDF:
What do families need to know when they are getting discharged from the NICU after HIE about epilepsy? A few things! HIE is the top cause of neonatal seizures, and can lead to various more common, and rare, seizure disorders and epilepsy. Knowledge is empowerment, during a time where things feel very much out of control. We think of empowering […]
Knowing seizure first aid is something EVERYONE should know. Just like becoming CPR-trained, it’s a skill you hope you don’t have to use, but glad you’ll have it if you do. The Epilepsy Foundation offers two tracks for getting seizure first aid trained – one is a 30 minute OnDemand course, offered online and fully accessible 24/7, and one is […]
Epilepsy is the most common diagnosis to come from HIE. It impacts roughly 50-60% of our HIE population, and has a range of impacts — from more common and more easily treatable seizure disorders, to more aggressive, rare forms. There’s no doubt about it, epilepsy comes with a lot of worry, but there is always hope. There is hope in […]
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