HIE Awareness Month
Join us for 2024's global HIE Awareness Month -- TRANSFORMING HOPE. We have many ways to get involved. Check out HIEawarenessmonth.com!
Join us for 2024's global HIE Awareness Month -- TRANSFORMING HOPE. We have many ways to get involved. Check out HIEawarenessmonth.com!
IT'S TIME TO HUSTLE FOR HOPE! We are hosting an in-person event at Cantine Memorial Field in Saugerties, NY on Sunday, April 28th from 8:00 AM - 1:00 PM EST. Complete the 5K YOUR way and meet local families along the way! HOW TO REGISTER: 📌 Starting February 15th, you can register specifically for this in-person event on our registration […]
IT'S TIME TO HUSTLE FOR HOPE! We are hosting an in-person event at Colt State Park on Sunday, April 28th from 10:00 AM - 12:30 PM EST in Bristol, Rhode Island! Complete the 5K YOUR way and meet local families along the way! HOW TO REGISTER: 📌 You can register specifically for this in-person event on our registration site: TinyURL.com/HustleforHope […]
Join Hope for HIE on Monday, April 29, at 2 p.m. EST as Dr. Kenji Cunnion, Dr. Nikki Robertson, Dr. Lina Chalak, and Dr. Brian Kalish discuss the importance of fostering a community culture of research and provide research developments and updates in their respective fields: 📌 Dr. Kenji Cunnion serves as the Chief Medical Officer at ReAlta Life Sciences, one […]
**DATE CHANGE** Join Hope for HIE on Wednesday, May 8, at 8:00 p.m. ET for our video support group session, designated for parents and legal guardians who are NEW TO HIE (within one year of diagnosis). ➡️ In this closed Zoom meeting led by Hope for HIE's licensed social worker, Haley, and facilitated by one of our peer mentors – Lynn […]
Join Hope for HIE on Thursday, May 9 at 12:00 PM ET for the next installment of the HIE Peer Perspective Series, where we'll discuss how to navigate HIE and its variable hearing impacts. ➡️ This closed Zoom support session is led by Hope for HIE’s licensed social worker, Haley, and is facilitated by dedicated members of our community – […]
Join Hope for HIE on Thursday, May 9 at 8:00 p.m. ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE, either at birth or in childhood, are invited to participate in this support group. ➡️ In this closed Zoom meeting experience led by Hope for HIE's […]
Join Hope for HIE on Tuesday, May 14 at 8:00 PM ET for our video support group session, where we'll discuss helpful ways to navigate and cope with additional diagnoses that arise after an HIE diagnosis. ➡️ In this closed Zoom meeting led by Hope for HIE's licensed social worker, Haley, and facilitated by one of our peer support mentors […]
Join us on Wednesday, May 15, from 2:00-3:00 PM ET, as Julie Keon, RSSW, Grief Counselor, Life-Cycle Celebrant and author of "What I Would Tell You: One Mother's Adventure with Medical Fragility," facilitates a session on grief, including living losses, ambiguous loss, and chronic sorrow. After a brief info session, there will be time for sharing and questions with Julie. […]
Join Hope for HIE on Tuesday, May 16 at 8:00 PM ET for our video support group designated for parents and legal guardians in our BIPOC community. ➡️ In this closed Zoom meeting led by Hope for HIE's licensed social worker, Haley, and facilitated by two of our peer support mentors – Khadijah B. and Megan C. – families will be […]
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