Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy


HIE Awareness Ambassador: Sam Villeneuve

April 25th, 2023  | Family Stories


Meet Sam Villeneuve, one of our HIE Awareness Ambassadors from Wisconsin, USA!   

What is your story and connection with HIE? 

Bren was born unresponsive and was resuscitated for 15 minutes. He spent 19 days in the NICU where we heard lots of diagnoses, potential outcomes, and things we needed to do. It was also in the NICU where we were introduced to Hope for HIE by a friend. Hope for HIE has given us connection to others and has helped make this journey not so lonely. We have met some amazing lifelong friends in this group. People who cry and cheer with us. People who we share our lows and highs with and they do the same with us.

How did you first hear about the diagnosis of HIE?

It was mentioned right away when we got to the NICU. The doctor that was rounding and giving us an update told us about it right away.

How did you first hear about Hope for HIE?

A friend sent us a message after hearing about Bren’s diagnosis. She told us her friend was part of this group and recommended it.

What do you want the world to know most about your story and HIE?

It’s a rollercoaster of emotions, a world of unknowns, and it makes the “small” milestones the biggest reason to celebrate. It gives new insights to the important things in life and reminds us to slow down and enjoy the little  things.



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