March is Cerebral Palsy Awareness Month, and who better to break down this topic than Dr. Edward Hurvitz, a Physical Medicine & Rehabilitation Physician/Physiatrist at the University of Michigan? He recently joined Hope for HIE LIVE to discuss the diagnostic journey of cerebral palsy, the multiple pathways of care available to those with CP, and the integral role a PM&R […]

Hope for HIE is growing, and we are so proud to be able to offer even more support services, programs, and opportunities for our community. As of February, Annie Gunning, Certified Child Life Specialist, joined Hope for HIE to provide Child Life services to our HIE families worldwide. Working for over 22 years in both the inpatient and community setting, […]

HIE Awareness Month is coming up quickly in April, and we are excited to showcase the diversity of our community throughout the month. One of the ways we are doing this is through our HIE AWARENESS MONTH AMBASSADOR PROGRAM. We are hoping to engage about 10-12 Ambassadors for the month, and will confirm our ambassadors by Monday, March 6, 2023. […]

Summer camp experiences should be for everyone! There are many different experiences and options for kids to have an overnight or meaningful day camp experience across the range of outcomes and impacts from HIE. Finding the right camp experience can be an overwhelming and stressful process, or something parents might not even know is possible, but it doesn’t have to […]

We are excited to welcome Dr. Danielle Guez Barber, accomplished pediatric neurologist, researcher and HIE mom, to our governing Board of Directors. Dr. Barber has been serving on Hope for HIE’s Medical Advisory Board since 2020, and will continue to leverage her multiple skill sets and perspectives to the overall strategic direction of the foundation. Danielle Guez Barber, MD PhD […]

Rachel Ramnarine is joining Hope for HIE for a winter internship. Rachel will be working on HIE Awareness Month initiatives, such as the social media campaign, HIE Awareness Ambassador program, and related promotion. She is a senior at the University of Miami in Florida, majoring in Communication, with a minor in Health Communication, set to graduate this May. She brings […]

The 2023 International Newborn Brain Conference held February 8-11 in Clearwater, FL brought together the leading experts in neonatal neurology, from 59 different countries. Hope for HIE’s global community was well-represented throughout the conference. In partnership with organizations like TREND Community, researchers from Maine Medical Center, and Joe DiMaggio Children’s Hospital, the HIE patient and family perspective were woven into […]

Annie Gunning, CCLS, is joining Hope for HIE to provide Child Life services for our Hope for HIE community. Annie has been a certified Child Life Specialist for over 22 years in both the inpatient and community setting. She is available to support the entire family system through child life interventions that aim to minimize the immediate and long-term effects […]

We are excited to share the 2022 Hope for HIE Impact Report: Interactive Document: Printable PDF:

Dear Hope for HIE community, 2022 was the biggest growth year yet for our “little organization that could and does”. I’m not sure we can say we are little anymore! This year, we were able to grow to serve thousands more families and accelerate advocacy and research — something we’ve been dreaming about for many years. Because of the incredible […]