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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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LATEST NEWS

We continue building out the most comprehensive multidisciplinary group to advise us as we grow and fulfill our mission and we are excited to announce the appointment of Dr. Matthew Mara DMD, EdD to Hope for HIE’s Medical Advisory Board. Matthew Mara DMD, EdD Dr. Matthew Mara DMD, EdD earned his Doctor of Dental Medicine degree and certificate of Advanced Education […]

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Welcome to the inaugural edition of our Child Life Specialist Q&A Series, where we dive into the invaluable insights and expertise of Hope for HIE’s Certified Child Life Specialist, Annie Gunning! During our live session, Annie shared her expertise regarding the ways in which parents, caregivers, and families can prepare both a child and their sibling for an upcoming test, […]

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Hope for HIE was recently honored to join forces with Dr. Juan Yepes, who serves multiple roles as a professor at Indiana University, an associate editor of the Journal of the American Dental Association, and as a pediatric dentist at Riley Children’s Hospital in Indiana, where he excels at providing specialized dental care and building educational resources for families to […]

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We continue building out the most comprehensive multidisciplinary group to advise us as we grow and fulfill our mission and are excited to announce the appointments of Dr. Ulrike Mietzsch and Katie Taylor, CCLS to Hope for HIE’s Medical Advisory Board. Ulrike Mietzsch, MD Dr. Ulrike Mietzsch is a Neonatologist at Seattle Children’s Hospital and Clinical Associate Professor of Pediatrics at the […]

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Hope for HIE is growing, and we are so proud to continue offering more services, programs, and opportunities for our community! As of May, Haley Thomas, LMSW – a licensed Medical Social Worker– joined Hope for HIE to support our global HIE families.  Beginning her career in 2008, Haley has ample experience supporting families from the beginning-to-end of life and […]

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Ashley Fielding – pediatric physical therapist and fellow HIE mom – joined Hope for HIE to discuss the benefits of physical therapy and the power of early interventions to promote growth, development, and progress!  If you missed her Live Q&A, don’t worry! Like any good partner, we took notes and are willing to share! Read our key takeaways below. Key […]

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Hope for HIE is thrilled to welcome Haley Thomas, LMSW, to our team as our new Social Worker. Haley brings with her a wealth of experience in medical social work, having worked in the field for the past 14 years, most recently at Children’s Healthcare of Atlanta, where she continues to work. In her role, Haley will be working on […]

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Through Hope for HIE’s partnership with Child Life On Call, all HIE families who have access to the app store for iPhone or Android can have 24/7 access to Child Life information and support. Putting tools and resources in the palm of your hand. Access the App

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Meet Khadijah Holmes, one of our HIE Awareness Ambassadors from Orlando, Florida.    What is your story and connection with HIE?  Our pregnancy went just fine and then the life I had planned was suddenly shattered at 39 weeks. My daughter was diagnosed with HIE at birth. Our lives were forever changed. As time progressed, I learned that it changed […]

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Meet Tanya MacNeil, one of our HIE Awareness Ambassadors from Eastern Passage, Canada!    What is your story and connection with HIE?  Beatrix suffered HIE at birth, she ended up in the NICU for a month. She was the sickest kiddo there, and we were repeatedly told there was no hope. When we refused to withdraw care, they offered the […]

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UPCOMING EVENTS

Meet & Greet - Vancouver, BC, Canada - October 7 @ 8:30 pm - October 7 @ 10:30 pm

We’re hosting a local Meet & Greet in Vancouver, BC, Canada on Saturday, October 7 from 5:30-7:30pm!   Come for some snacks, drinks and conversation with fellow HIE families, Hope for HIE medical advisory board members & staff!   Location: Cactus Club Cafe Coal Harbour 1085 Canada Place Vancouver, BC V6C 0C3

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Video Support Group: Loss Families (October 2023) - October 12 @ 8:00 pm - October 12 @ 9:00 pm

Join us on Thursday, October 12, 2023 at 8 p.m. EST for Hope for HIE’s video support group session for loss families. Parents and legal guardians who have lost their children due to HIE, either at birth or in childhood, are invited to participate in this support group.   ➡️ Led by Hope for HIE’s licensed social worker, Haley, families will […]

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Video Support Group: Feeding Tubes & HIE - October 13 @ 10:00 am - October 13 @ 11:00 am

Join us on Friday, October 13, for Hope for HIE’s video support group session to discuss feeding tubes and HIE. This is designed for parents and legal guardians who would like more information on navigating a feeding tube and HIE.   ➡️ Led by Hope for HIE’s licensed social worker, Haley, families will be engaged in a space of healing and […]

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Video Support Group: Grief & Trauma - October 17 @ 12:00 pm - October 17 @ 1:00 pm

Join us on Tuesday, October 17, for Hope for HIE’s video support group session for parents and legal guardians to discuss the grief and trauma that can be associated with an HIE diagnosis.   ➡️ Led by Hope for HIE’s licensed social worker, Haley, families will be engaged in a space of healing and hope, no matter where their journey may […]

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Video Support Group: Childhood Loss Families - October 26 @ 8:00 pm - October 26 @ 9:00 pm

Join us on Thursday, October 26, 2023, for Hope for HIE’s video support group session for loss families. Parents and legal guardians who have lost their children due to HIE later in childhood are invited to participate in this monthly support group.   ➡️ Led by Hope for HIE’s licensed social worker, Haley, families will be engaged in a space of […]

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WELCOME

We are the worldwide voice of families who have children with Hypoxic Ischemic Encephalopathy

We’re the largest collective of HIE help, support, resources, and families in the world, with an incredibly active and engaged community. Hope for HIE is deeply committed to providing comprehensive, personalized support for each family’s journey.

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RESOURCES

We have been scared. We have felt alone. We have felt overwhelmed. Our mission is to improve the quality of life for children and families affected by Hypoxic Ischemic Encephalopathy through awareness, education and support.

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RESEARCH
INQUIRIES

We regularly work with researchers, clinicians and industry partners who are working to decrease the incidence of HIE, and improve the quality of life for babies and children who face it. If you are a researcher and would like to partner with our community of over 8,500 families, reach out.

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Hope for HIE’s Board of Directors, Medical Advisory Board, Council of Advisors, and volunteers can provide in-depth professional insight and storytelling on a variety of topics.

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