fbpx
Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

You’re Not Alone

THERE IS
ALWAYS HOPE

Connect

LATEST NEWS

Our families are all too familiar with the agonizing “wait and see” game that comes with an HIE diagnosis. The uncertainty surrounding our child’s long-term impacts, outcomes, and quality of life is a harsh reality we grapple with daily. We wait for results, we wait for researchers to uncover new therapeutic interventions, and we wait for data that could offer […]

Read More

No matter its length, whether it’s a NICU stay, PICU stay, or hospitalization, the experience is often accompanied by trauma, and our HIE families want an anchor amidst the storm. In our recent conversation with Dr. Latrice L. Dowtin, Co-Chair of the National Network of NICU Psychologists, founder and clinician at PlayfulLeigh Psyched, and Hope for HIE Medical Advisory Board […]

Read More

Advocacy is important; there’s no doubt about it. But let’s face it: putting it into action can be hard, especially when navigating the complexities of medical care. Between emotions running high, the need to digest large amounts of not-so-easy-to-understand information, and the pressure to make quick but responsible decisions, it’s totally normal to feel overwhelmed. Plus, add in the uncertainty, […]

Read More

April 10th is National Siblings Day, and what better day than today to recognize Hope for HIE’s Super Sibs? What’s a Super Sib, you may ask? A sibling of a brother or sister with HIE across any outcome or impact. Sometimes, our Super Sibs can bear a significant load: they are asked to take on a lot, go forth with […]

Read More

Between our phones, laptops, computers, and the myriad of other devices we use daily, it’s almost as if we have a virtual companion at our fingertips, ready to assist with any HIE-related questions or concerns, day or night. It’s natural to turn to digital tools for research and support, but here’s the catch: while AI offers convenience, it doesn’t always […]

Read More

At Hope for HIE, we hold the providers who showcase their commitment and passion for research and improved clinical care practices for those impacted by HIE’s various outcomes near and dear to our hearts. So when Dr. Laura Gilbert, a pediatric neurologist at Lurie’s Children’s Hospital, teamed with us during Cerebral Palsy Awareness Month to shed light on a prevalent […]

Read More

So many of our medically complex kids get recurrent respiratory infections. Researchers at Vanderbilt University are wanting to hear YOUR experience as a parent on how to improve care! The team is looking at getting input from families to develop patient and family-centered outcome measures. Details below! Who: US-based families of medically complex kids who have been hospitalized for respiratory illnesses […]

Read More

Welcome to 2024 HIE Awareness Month! We come together every April โ€“ families, clinicians, researchers, partners, supporters and others in our global community โ€“ to spread awareness into the world about neonatal and childhood acquired Hypoxic Ischemic Encephalopathy. This year, the community theme is TRANSFORMING HOPE. Our community is over 10,000 families, researchers, clinicians, and community members strong, across all ages and […]

Read More

Hypoxic-ischemic encephalopathy (HIE) is a condition that affects infants and children with many causes due to reduced oxygen supply before, during or after birth, and in childhood, leading to potential neurological challenges. One crucial aspect of managing HIE in children is understanding their baseline, which refers to their typical level of functioning or development. This concept plays an important role […]

Read More

When you think about the different impacts of HIE, your mind may jump to more well-known conditions like epilepsy or cerebral palsy. But here’s something you might not have heard: around 30 to 50 percent of newborns with moderate to severe HIE might also experience Acute Kidney Injury (AKI) in their early days. And for some of them, there’s a […]

Read More

UPCOMING EVENTS

HIE Awareness Month - April 1 - April 30

Join us for 2024’s global HIE Awareness Month — TRANSFORMING HOPE. We have many ways to get involved. Check out HIEawarenessmonth.com!

Read More
Sparks, NV Hustle for Hope 5K Event - April 21 @ 8:30 am - April 21 @ 12:30 pm

IT’S TIME TO HUSTLE FOR HOPE! We are hosting an in-person event at Sparks Marina Park on Sunday, April 21st from 8:30 AM – 12:30 PM PST in Sparks, Nevada! Complete the 5K YOUR way and meet local families along the way! HOW TO REGISTER: ๐Ÿ“Œ Starting February 15th, you can register specifically for this in-person event on our registration […]

Read More
Detroit, MI Hustle for Hope 5K Event - April 21 @ 11:00 am - April 21 @ 1:00 pm

IT’S TIME TO HUSTLE FOR HOPE! We are hosting an in-person event at Rotary Park on Sunday, April 21st from 11:00 AM to 1:00 PM EST near Detroit, MI! Complete the 5K YOUR way and meet local families along the way! HOW TO REGISTER: ๐Ÿ“Œ Register specifically for this in-person event on our registration site: TinyURL.com/HustleforHope๐Ÿ“Œ Visit the event page […]

Read More
Causations & Misperceptions of HIE: Q&A with Dr. Mark Scher - April 24 @ 12:00 pm - April 24 @ 1:00 pm

Join Hope for HIE on Wednesday, April 24, at 12 p.m. EST, as Dr. Mark Scher, Professor of Pediatrics and Neurology at Case Western Reserve University School of Medicine, explores the various causes and misperceptions of HIE. Specifically, heโ€™ll explore: ๐Ÿ“Œ Understanding the causes and risk factors associated with HIE ๐Ÿ“Œ Exploring the mechanics of fetal development and how he […]

Read More
HIE Grandparent & Family Support Day 2024 - April 25 - April 25

Join us in celebrating HIE Grandparent & Family Support Day!

Read More
Imperial, PA Hustle for Hope 5K Event - April 27 @ 8:30 am - April 27 @ 11:30 am

IT’S TIME TO HUSTLE FOR HOPE! We are hosting an in-person event at Donaldson Park on Saturday, April 27th from 8:30-11:30 AM EST in Imperial, Pennsylvania! Complete the 5K YOUR way and meet local families along the way! HOW TO REGISTER: ๐Ÿ“Œ Starting February 15th, you can register specifically for this in-person event on our registration site: TinyURL.com/HustleforHope ๐Ÿ“Œ Visit […]

Read More
Dollard des Omeaux, Quebec, Canada Hustle for Hope 5K Event - April 27 @ 9:00 am - April 27 @ 12:00 pm

IT’S TIME TO HUSTLE FOR HOPE! We are hosting an in-person event at the Dollard des Ormeaux Civic Center on Saturday, April 27th from 9:00 AM-12:00 PM EST in Dollard des Omeaux, Quebec, Canada! Complete the 5K YOUR way and meet local families along the way! HOW TO REGISTER: ๐Ÿ“Œ Register specifically for this in-person event on our registration site: […]

Read More
Waukesha, WI Hustle for Hope 5K Event - April 27 @ 10:00 am - April 27 @ 12:00 pm

IT’S TIME TO HUSTLE FOR HOPE! We are hosting an in-person event at Frame Park Riverwalk on Saturday, April 27th from 10 AM to 12 PM CST. Complete the 5K YOUR way and meet local families along the way! HOW TO REGISTER: ๐Ÿ“Œ Starting February 15th, you can register specifically for this in-person event on our registration site: TinyURL.com/HustleforHope ๐Ÿ“Œ […]

Read More
Fort Saskatchewan, Alberta, Canada Hustle for Hope 5K Event - April 27 @ 11:00 am - April 27 @ 2:00 pm

IT’S TIME TO HUSTLE FOR HOPE! We are hosting an in-person event at the Boat Launch at West Rivers Edge in Fort Saskatchewan, Alberta, Canada on Saturday, April 27th from 11:00 AM – 2:00 pm MST. Complete the 5K YOUR way and meet local families along the way! HOW TO REGISTER: ๐Ÿ“Œ Starting February 15th, you can register specifically for […]

Read More
Charlotte, NC Hustle for Hope 5K Event - April 27 @ 12:00 pm - April 27 @ 2:00 pm

IT’S TIME TO HUSTLE FOR HOPE! We are hosting an in-person event at Park Road Park on Saturday, April 27th from 12:00-2:00 PM EST in Charlotte, North Carolina! Complete the 5K YOUR way and meet local families along the way! HOW TO REGISTER: ๐Ÿ“Œ Starting February 15th, you can register specifically for this in-person event on our registration site: TinyURL.com/HustleforHope […]

Read More

WELCOME

We are the worldwide voice of families who have children with Hypoxic Ischemic Encephalopathy

Weโ€™re the largest collective of HIE help, support, resources, and families in the world, with an incredibly active and engaged community. Hope for HIE is deeply committed to providing comprehensive, personalized support for each familyโ€™s journey.

SIGN UP HERE FOR MORE INFORMATION

Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.

  • This field is for validation purposes and should be left unchanged.

RESOURCES

We have been scared. We have felt alone. We have felt overwhelmed. Our mission is to improve the quality of life for children and families affected by Hypoxic Ischemic Encephalopathy through awareness, education and support.

Learn More

RESEARCH
INQUIRIES

We regularly work with researchers, clinicians and industry partners who are working to decrease the incidence of HIE, and improve the quality of life for babies and children who face it. If you are a researcher and would like to partner with our community of over 8,500 families, reach out.

Learn More

BOOK A
SPEAKER

Hope for HIE’s Board of Directors, Medical Advisory Board, Council of Advisors, and volunteers can provide in-depth professional insight and storytelling on a variety of topics.

Book Now

SIGNUP

Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.

  • This field is for validation purposes and should be left unchanged.