We don’t know about you, but we think it’s time to recognize, celebrate, and empower the unsung HIEroes of the HIE community — the brothers and sisters who stand strong alongside their HIE siblings and those they remember who have passed. Sometimes, our Super Sibs can bear a significant load: they are asked to take on a lot, go forth […]

Hypoxic-Ischemic Encephalopathy (HIE) is a type of brain injury that occurs when a newborn’s brain doesn’t receive enough oxygen and blood flow at or around the time of birth. This lack of oxygen can lead to long-term impacts, especially in how the brain develops and functions. Among the most challenging complications for children with HIE are certain types of epilepsy […]

We’ve said it before, and we’ll say it again: the Neonatal Seizure Registry (NSR) is the gold standard for integrating parental input at every step—from study design all the way to its dissemination. Two incredible members of the NSR team—Dr. Monica Lemmon, a pediatric neurologist at Duke Health and a valued member of Hope’s Medical Advisory Board, and Natalie Field, […]

Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.

Sleep is one of the most talked about impacts from HIE with our global community of families, and across the spectrum of outcomes. When children don’t sleep, parents don’t either and this can impact the full family quality of life. The Neonatal Seizure Registry group has published new data about long-term outcome data after neonatal seizures, which HIE is the […]

As Hope for HIE continues to expand its impact, it has become clear that bridging the gap between clinical research and family support is critical. Families affected by HIE need representation in research studies to ensure their voices are heard, and researchers need insights that reflect real-world experiences to improve outcomes. This is where Gina Abraham’s role as Clinical Research […]

In Hypoxic-Ischemic Encephalopathy (HIE), seizures are common due to the brain injury caused by lack of oxygen and blood flow. Here are the most common types seen with HIE and their definitions: Common Types of Seizures with HIE Tonic Seizures: Characterized by a sustained muscle contraction or stiffening, tonic seizures usually cause the limbs or neck to extend or flex […]

When your child needs an EEG, it’s completely normal for them to feel anxious. The unfamiliar equipment, the idea of having electrodes attached to their head, and the pressure to stay still can all be a lot to handle. That’s why prepping for the procedure through pretend play or role-playing is such a helpful tool. By making the process more […]

Hypoxic-Ischemic Encephalopathy (HIE) is a brain injury resulting from a lack of oxygen and blood flow, often during birth. Children with HIE face various challenges depending on the severity and extent of the injury, with epilepsy being one of the most common long-term conditions associated with HIE. Epilepsy, a neurological disorder that leads to recurrent seizures, can range in severity […]

As the saying goes, “It takes a village,” and at Hope, we have a strong one. Every month, our HIE Peer Perspective series brings together committed members of the HIE community to share their valuable insights into the diverse impacts and outcomes of HIE, offering firsthand experiences and guidance on navigating its various challenges. In our latest session, devoted dads […]