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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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EEGs can be very stressful to prepare for, live with, and clean up the literal mess they cause. But, with so many families going through them with their children, we’ve assembled the best advice, and some links from other vetted medical organizations to help you out. What is an EEG and why would my child get one? EEG (Electroencephalogram) is […]

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Simran Bansal, graduating senior at Duke University, spent the last year as Hope for HIE’s first intern. As a part of her senior capstone project, she interviewed over 65 families and clinicians involved in the HIE community, to put together an anthology of the Hope for HIE community. Through storytelling, Simran wanted to help families heal, give them an opportunity […]

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We continue building out the most comprehensive multidisciplinary group to advise us as we grow and fulfill our mission and are excited to announce the appointment Dr. Jori Bogetz to Hope for HIE’s Medical Advisory Board. Dr. Bogetz brings incredible expertise and passion to the focus area of pediatric palliative care medicine. Through her work, she helps children and families who […]

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ReAlta Life Sciences, Inc. (“ReAlta”) a clinical stage, rare disease company addressing life-threatening diseases through harnessing the power of the immune system, announces its support of Hope for HIE, a global patient advocacy organization, as a platinum-level Partner in Hope, during April’s HIE Awareness month. HIE, or hypoxic ischemic encephalopathy, is a type of brain injury that impacts babies around […]

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Hi. I’m Steve, and what I’m about to share isn’t simply just a pump for an extremely worthy cause because there are so many – it’s an important piece of my life’s puzzle that I want to talk about and yet it’s an issue that’s still shrouded in a lot of mystery, maybe in part due to all of the […]

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Hope for HIE was selected as a pilot partner in the new Neurology Social Services Network program between the Child Neurology Foundation and Unite Us. Unite Us is the nation’s leading technology company connecting health and social care services. Intended to fill a gap reported by families in the Child Neurology Foundation’s network, this partnership is a coordinated effort to […]

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Beth, mom to Rowan, recently joined the Hope for HIE Parent Support Hub on Facebook. Rowan is three years old and was diagnosed with HIE (hypoxic ischemic encephalopathy) at birth, and with global developmental delay at six months old. “Finding the Hope For HIE group has helped me in so many different ways the past few months. I’ve connected with […]

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Hope for HIE is pleased to share the first cohort of the Peer Support Mentor program launching this month. As a part of the outgrowth of Hope for HIE’s support programs, Vanessa Zinke, LCSW, has been diligently working to launch a 1:1 peer support mentorship program for HIE families who are either new to HIE, or new to loss from […]

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HOPE INSPIRES SUPPORT Megan C. reached out to Hope for HIE with an idea — to help families during a joyous and tough time feel supported and loved by starting a birthday card program. We assembled a team of volunteers who have been sending out cards to our HIE community families that kicked off earlier this year. Volunteers were stocked […]

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Our precious son Scout was born August 3rd, 2021 by emergency cesarean after a failed induction. To our shock, he was born with no heart beat. Our medical team revived him after 15 minutes of CPR and three rounds of EPI. We were quickly warned that his outcome would be unknown. As I went to recovery, Scout went up to […]

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WELCOME

We are the worldwide voice of families who have children with Hypoxic Ischemic Encephalopathy

We’re the largest collective of HIE help, support, resources, and families in the world, with an incredibly active and engaged community. Hope for HIE is deeply committed to providing comprehensive, personalized support for each family’s journey.

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RESOURCES

We have been scared. We have felt alone. We have felt overwhelmed. Our mission is to improve the quality of life for children and families affected by Hypoxic Ischemic Encephalopathy through awareness, education and support.

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RESEARCH
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Every day, we work relentlessly to partner with researchers who are working to decrease the incidence of HIE, and improve the quality of life for babies and children who face it. If you are a researcher and would like to partner with our community of over 7,000 families, reach out.

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Hope for HIE’s Board of Directors, Medical Advisory Board, Council of Advisors, and volunteers can provide in-depth professional insight and storytelling on a variety of topics.

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