fbpx
Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

You’re Not Alone

THERE IS
ALWAYS HOPE

Connect

LATEST NEWS

We recently sat down with Dr. Chris Carosella, double-boarded Pediatric Neurologist & Sleep Medicine specialist, and Hope for HIE Medical Advisory Board member, to discuss sleep issues in children with HIE and other neurological conditions. Welcome, Dr. Carosella! Please share with us a little bit about your background and interest in dual training and practice of sleep medicine and pediatric […]

Read More

If your child has experienced seizures, even if they are under control, or you had resolved neonatal seizures, a Seizure Action Plan is an important tool for anyone in your child’s life to be aware of. Seizure Action Plans outline what to do in case of a seizure for your child. This could include when to call 911, a bit […]

Read More

Epilepsy truly embodies a “trial and error” approach sometimes. Certain types of seizure disorders and seizure types are more responsive to specific medications than others. Epilepsy in HIE is pretty common, and HIE is a leading cause of some specific types of epilepsy and seizure disorders. Why are seizure problematic? Sometimes they can inhibit development, learning, and focus. Sometimes they […]

Read More

A PICU Journey with HIE – by Amy Bannister DiGiacomo Expectant parents say this all the time. I probably said it too, until my second child, Oliver, was born. Now the phrase hits me in the chest when I hear it. Oliver’s birth was fine until it wasn’t. When he was four days old, he stopped breathing in my arms […]

Read More

IT’S THAT TIME OF THE YEAR AGAIN! We’ve got ALL SORTS of amazing Hope for the Holidays things planned. We’ve got some AMAZING giveaways planned for our sixth annual Hope for the Holidays 10 Days of Giveaways in December that we’ll run again December 6-15 in our Parent Hub on Facebook, giving away over $10,000 of adaptive equipment, things to make […]

Read More

Join us as David Ford, president of Hope for HIE’s board of directors, shares his HIE story, his calling to give back to Hope for HIE, and encouragement for others to get involved in a myriad of ways as the giving season begins. Learn how to get started with Giving Tuesday, Hope for HIE’s 100 for $100 campaign, and the […]

Read More

NOW AVAILABLE! Casual Crafts by Mrs. White has once again designed our annual ornament. For $12 ($8 for the ornament, $4 for shipping), you can adorn your tree, or hang this in a special place in your house! These make excellent gifts for teachers, therapists, friends and family members! And, $2 of each purchase goes back to Hope for HIE. […]

Read More

Hope for HIE Parent Support Hub – The Heart of our Support Network Hope for HIE connects over 7,000 families through over 100 topic, location and outcomes-based support groups here on Facebook. What has traditionally been called the “main parent forum” is now called the Parent Support Hub. This group is the HUB of activity, and the heart of our […]

Read More

There is a cohort of kids who will persistently need medications out of the NICU, and there are children who will not have persistent seizures, or experience neonatal seizures at all, but develop epilepsy later in childhood. There are a few nuances for what is most typically seen with these epilepsy cases, and some things to ask about (some of […]

Read More

What do families need to know when they are getting discharged from the NICU after HIE about epilepsy? A few things! HIE is the top cause of neonatal seizures, and can lead to various more common, and rare, seizure disorders and epilepsy. Knowledge is empowerment, during a time where things feel very much out of control. We think of empowering […]

Read More

UPCOMING EVENTS

Giving Tuesday Kick-Off - November 30 @ 8:00 am - November 30 @ 8:30 am

Join us as we kick-off our #GivingTuesday efforts over on Facebook. Giving Tuesday Event Information

Read More

WELCOME

We are the worldwide voice of families who have children with Hypoxic Ischemic Encephalopathy

We’re the largest collective of HIE help, support, resources, and families in the world, with an incredibly active and engaged community. Hope for HIE is deeply committed to providing comprehensive, personalized support for each family’s journey.

SIGN UP HERE FOR MORE INFORMATION

Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.

  • This field is for validation purposes and should be left unchanged.

RESOURCES

We have been scared. We have felt alone. We have felt overwhelmed. Our mission is to improve the quality of life for children and families affected by Hypoxic Ischemic Encephalopathy through awareness, education and support.

Learn More

RESEARCH
INQUIRIES

Every day, we work relentlessly to partner with researchers who are working to decrease the incidence of HIE, and improve the quality of life for babies and children who face it. If you are a researcher and would like to partner with our community of over 6,000 families, reach out.

Contact Us

BOOK A
SPEAKER

Hope for HIE’s Board of Directors, Medical Advisory Board, Council of Advisors, and volunteers can provide in-depth professional insight and storytelling on a variety of topics.

Book Now

SIGNUP

Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.

  • This field is for validation purposes and should be left unchanged.