In the world of Hope for HIE, there’s an incredible community of families who not only navigate the challenges of this journey, but also extend their support, connection, gifts, and stories to uplift others. Each has a remarkable story to share about their “why” — volunteering their time and hearts to Hope for HIE, making a positive impact on countless […]

Epilepsy is a common issue affecting about 50-60% of the children with HIE (hypoxic ischemic encephalopathy), a condition that occurs when a newborn or child’s brain doesn’t get enough oxygen. This can result in different types of seizures, from more common and manageable ones to rarer and more challenging forms. Having epilepsy can be worrying, but it’s essential to know […]

As the holiday season fills the air with scents of cinnamon, pine, or freshly baked cookies, it might seem unusual to start thinking about upcoming summer camp experiences. But believe it or not, the time to plan and register for these enriching opportunities is now!  And just as the holiday season has its distinctive traditions, summer camps also offer a unique […]

Losing a child is an indescribable pain, and when that loss is due to a condition like hypoxic ischemic encephalopathy (HIE), it can be especially devastating for parents. During such challenging times, extended family and friends often want to provide support but may struggle with knowing the best ways to offer assistance. Understanding how to be helpful to parents who […]

Hope for HIE’s Peer Mentorship Program acts as a cornerstone of our commitment to fostering connection and support within the HIE community. Under the guidance of our dedicated social worker, Haley Thomas, our program offers 1:1 peer support through a remarkable team of over a dozen trained and experienced mentors. These mentors are diverse and vital members of our community, […]

In the complex world of healthcare, understanding FDA classifications is crucial for making informed decisions. The United States Food and Drug Administration (FDA) plays a vital role in ensuring the safety and effectiveness of medical products, but the distinctions between FDA approval, FDA clearance, FDA authorization, and FDA de novo, along with the impact of marketing language, can be challenging. […]

We continue building out the most comprehensive multidisciplinary group to advise us as we grow and fulfill our mission and we are excited to announce the appointment of Dr. Matthew Mara DMD, EdD to Hope for HIE’s Medical Advisory Board. Matthew Mara DMD, EdD Dr. Matthew Mara DMD, EdD earned his Doctor of Dental Medicine degree and certificate of Advanced Education […]

Welcome to the inaugural edition of our Child Life Specialist Q&A Series, where we dive into the invaluable insights and expertise of Hope for HIE’s Certified Child Life Specialist, Annie Gunning! During our live session, Annie shared her expertise regarding the ways in which parents, caregivers, and families can prepare both a child and their sibling for an upcoming test, […]

Hope for HIE was recently honored to join forces with Dr. Juan Yepes, who serves multiple roles as a professor at Indiana University, an associate editor of the Journal of the American Dental Association, and as a pediatric dentist at Riley Children’s Hospital in Indiana, where he excels at providing specialized dental care and building educational resources for families to […]

We continue building out the most comprehensive multidisciplinary group to advise us as we grow and fulfill our mission and are excited to announce the appointments of Dr. Ulrike Mietzsch and Katie Taylor, CCLS to Hope for HIE’s Medical Advisory Board. Ulrike Mietzsch, MD Dr. Ulrike Mietzsch is a Neonatologist at Seattle Children’s Hospital and Clinical Associate Professor of Pediatrics at the […]