Hope for HIE’s Peer Mentorship Program is a cornerstone of our commitment to fostering connection and support within the HIE community. Under the guidance of our dedicated social worker, Haley Thomas, our program offers 1:1 and on-call peer support through a remarkable team of 18 trained and experienced mentors. These mentors are diverse and vital community members, offering compassionate guidance […]

Today, September 19, 2024 marks the 10 year anniversary of Hope for HIE as a confirmed charitable nonprofit organization! We are excited to kick off a year long celebration reflecting on the many hands and hearts that have contributed to the continued success of the first global HIE advocacy and support organization that is trailblazing in awareness, advocacy, education, research […]

One of the biggest challenges of being thrust into an unexpected journey with a baby facing HIE and/or neonatal seizures is sometimes feeling anxiety when people ask if you have any questions. Enter the Neonatal Seizure Registry — a research group that has been advancing care and understanding of the whole family impact of neonatal seizures, and building helpful tools […]

As the saying goes, “It takes a village,” and at Hope, we have a strong one. Every month, our HIE Peer Perspective series brings together committed members of the HIE community to share their valuable insights into the diverse impacts and outcomes of HIE, offering firsthand experiences and guidance on navigating its various challenges. One of our sessions focused on […]

As the saying goes, “It takes a village,” and at Hope, we have a strong one. Every month, our HIE Peer Perspective series brings together committed members of the HIE community to share their valuable insights into the diverse impacts and outcomes of HIE, offering firsthand experiences and guidance on navigating its various challenges. One of our previous sessions focused […]

When studying neonatal seizures, researchers often focus on the patient experience, leaving the emotional journey of parents less explored. Given that HIE is the top cause of neonatal seizures, it is reasonably assumed that our HIE parents navigate their own complex emotional path throughout this journey, marking a significant gap in providing them with effective, tailored support. That’s why we’re […]

While a quick Google search of “TREES + Wisconsin” will inform you of the types of trees native to that area (Sugar Maple, Bur Oak, and the Red Musclewood, if you’re curious), an entry of “TREES + Lab + Wisconsin” will guide you right to Dr. Melissa Carrasco McCaul’s research lab, which is paving the way for more effective strategies […]

Remember earlier this year when we asked our HIE families to share about sleep issues and HIE? Well, this community-driven effort has culminated in these published results! This achievement, made possible by Dr. Renée Shellhaas and her research team at WASHU, the continued support of Hope’s Medical Advisory Board, and – most importantly – our HIE families, is a collaborative […]

As the saying goes, “It takes a village,” and at Hope, we have a strong one. Every month, our HIE Peer Perspective series brings together committed members of the HIE community to share their valuable insights into the diverse impacts and outcomes of HIE, offering firsthand experiences and guidance on navigating its various challenges. One of our previous sessions focused […]

Navigating HIE can be complex and overwhelming, and whether families are in the initial weeks of diagnosis or are dealing with new challenges, impacts, and outcomes over time, connecting them with guidance, support, and resources can make all the difference. A NICU, PICU, or any planned or unplanned hospitalization at any moment of this journey can heighten the need for […]