Hope for HIE is growing, and we are so proud to continue offering more services, programs, and opportunities for our community! As of May, Haley Thomas, LMSW – a licensed Medical Social Worker– joined Hope for HIE to support our global HIE families.  Beginning her career in 2008, Haley has ample experience supporting families from the beginning-to-end of life and […]

Ashley Fielding – pediatric physical therapist and fellow HIE mom – joined Hope for HIE to discuss the benefits of physical therapy and the power of early interventions to promote growth, development, and progress!  If you missed her Live Q&A, don’t worry! Like any good partner, we took notes and are willing to share! Read our key takeaways below. Key […]

Hope for HIE is thrilled to welcome Haley Thomas, LMSW, to our team as our new Social Worker. Haley brings with her a wealth of experience in medical social work, having worked in the field for the past 14 years, most recently at Children’s Healthcare of Atlanta, where she continues to work. In her role, Haley will be working on […]

Through Hope for HIE’s partnership with Child Life On Call, all HIE families who have access to the app store for iPhone or Android can have 24/7 access to Child Life information and support. Putting tools and resources in the palm of your hand. Access the App

Meet Khadijah Holmes, one of our HIE Awareness Ambassadors from Orlando, Florida.    What is your story and connection with HIE?  Our pregnancy went just fine and then the life I had planned was suddenly shattered at 39 weeks. My daughter was diagnosed with HIE at birth. Our lives were forever changed. As time progressed, I learned that it changed […]

Meet Tanya MacNeil, one of our HIE Awareness Ambassadors from Eastern Passage, Canada!    What is your story and connection with HIE?  Beatrix suffered HIE at birth, she ended up in the NICU for a month. She was the sickest kiddo there, and we were repeatedly told there was no hope. When we refused to withdraw care, they offered the […]

ARGENICA THERAPEUTICS (ASX: AGN) PARTNERS WITH GLOBAL HYPOXIC ISCHAEMIC ENCEPHALOPATHY (HIE) ADVOCACY ORGANISATION HOPE FOR HIE AS ARG-007 MOVES CLOSER TO CLINICAL TRIALS Perth, Western Australia: April 19th, 2023, – Argenica Therapeutics Limited (ASX: AGN), a biotechnology company developing novel neuroprotective therapeutics, announces its support and partnership with Hope for HIE (Hypoxic Ischemic Encephalopathy), a global patient advocacy and support organisation, […]

Meet Jessica Hughes, one of our HIE Awareness Ambassadors from Devon, United Kingdom.  They always say writing the first sentence is the most difficult. After going through such a significant life event, I feel almost uneasy trying to find a place to start with this story, but I am choosing to begin with hope. Even though we were in the […]

Loss in HIE is unfortunately one of the devastating outcomes for too many families. It can be experienced either in the neonatal period, or anytime during childhood or even adulthood from complications stemming from HIE. At Hope for HIE, we work to ensure our loss families are wrapped in support and are always working to build out more to ensure […]

Many HIE community members are no strangers to guilt, which is one of the most common emotions people face in the aftermath of trauma. Whether it’s guilt about not doing enough to prevent HIE, or feelings of blame towards oneself or others, managing these complex emotions can be a significant challenge. Fortunately, we held a live Q&A with our licensed […]