Each year, HIE Awareness Month is a time to amplify voices, share stories, and build a stronger, more connected community. Our 2025 Awareness Month Ambassadors are parents, advocates, and changemakers who are dedicated to making a difference—raising awareness, offering support, and putting Hope in Action. In this special collection of letters, our Ambassadors share their journeys, challenges, and hopes for […]
The Jarett Family beautifully illustrates how connection and support can lead to meaningful moments that honor every unique HIE journey. At their wedding, Amelia’s aunt and uncle chose to forgo traditional wedding favors and instead made a donation to Hope for HIE in Amelia’s honor, with Amelia serving as the flower girl. To further raise awareness, a framed display with […]
We’re continually inspired by remarkable families like the Arnall Family, who have turned their personal journey with HIE into a powerful platform for raising awareness. Not only has Braedn been deeply involved in spreading awareness about HIE within his local gym community, but he has also made a significant impact as an HIE Awareness Month Ambassador. By sharing Hope’s informational […]
We’re constantly inspired by incredible families, like the Niblett Family, who have turned their experience with HIE into a powerful force for advocacy and support. Not only have Romm and his family become deeply involved in the research and advocacy space in Australia, but Romm also serves as a peer support mentor, offering guidance, connection, and support to other families. […]
Hope for HIE is built by an incredible community of families who face the challenges of this journey with strength, resilience, and compassion. What’s even more inspiring is how they go beyond their own experiences to lift others up—sharing their support, connections, gifts, and stories to create a network of hope and understanding. Every family has a powerful “why” behind […]
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