For too many kids with HIE, loss in childhood can be an eventual outcome. HIE is incredibly complex, and the parenting journey taking care of children who may have shortened life spans brings unique challenges, with many questions, feelings and decision-making along the way that can feel very isolating. Justin Yan’s daughter, Mila, was born in March 2015 with HIE. […]
Hi. I’m Steve, and what I’m about to share isn’t simply just a pump for an extremely worthy cause because there are so many – it’s an important piece of my life’s puzzle that I want to talk about and yet it’s an issue that’s still shrouded in a lot of mystery, maybe in part due to all of the […]
Beth, mom to Rowan, recently joined the Hope for HIE Parent Support Hub on Facebook. Rowan is three years old and was diagnosed with HIE (hypoxic ischemic encephalopathy) at birth, and with global developmental delay at six months old. “Finding the Hope For HIE group has helped me in so many different ways the past few months. I’ve connected with […]
Our precious son Scout was born August 3rd, 2021 by emergency cesarean after a failed induction. To our shock, he was born with no heart beat. Our medical team revived him after 15 minutes of CPR and three rounds of EPI. We were quickly warned that his outcome would be unknown. As I went to recovery, Scout went up to […]
I’ll forever go back to the day I found out I was pregnant – scared; nervous and terrified to have my first baby. I wish more than anything I could rewind my life to that moment and be as naïve as to what could happen as I was back then. I had a picture-perfect pregnancy. Everything went smooth, at least […]
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