Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Finding Intrinsic Hope

Finding Intrinsic Hope

April 9th, 2021  | Family Stories  |  By Rhea May

April is HIE awareness month – and one of the daily themes is about Capturing HOPE. Connor experienced a lack of oxygen sometime during delivery – it was nobody’s fault – honestly it happens more than you think. For Connor, the brain damage resulted in Cerebral Palsy that affects motor control of his body. Hope for HIE is a nonprofit […]

A Surreal Beginning

A Surreal Beginning

April 8th, 2021  | Family Stories  |  By Naomi Lichtenstein Shicker

Up until 2.5 years ago, I, like most people, had never heard of HIE. Since April is HIE Awareness month, I decided to write a little about our experience. It was Sunday, October 7, 2018. Once again, I hadn’t felt the baby moving. I drove to the hospital to get monitored, thinking it would be like the last few times […]

Finding Hope: HIE Awareness Month Reflection

Finding Hope: HIE Awareness Month Reflection

April 5th, 2021  | Family Stories

Hope for HIE *The first year * As days passed by, we were still waiting for big things to happen. Eliana still hadn’t cried, opened her eyes or even showed signs of a suck/swallow reflex. This was hard. She still wasn’t holding her own temperature and they were trying to get her sodium levels balanced. She had so much happening. […]

Natasha’s Story

Natasha’s Story

October 18th, 2020  | Family Stories  |  By NATASHA WHITTON

Our daughter, Aubree, was born on the 16th December at 9.12am. After approximately 14 hours in labour my waters broke which showed thick meconium, my partner (Tom) called for the midwife and before I knew it I was being wheeled down to the labour ward. The CTG was put round me and we were asked ‘who’s cutting the babies cord?’ ‘do you […]

A Decade with HIE: A Mother’s Reflection

A Decade with HIE: A Mother’s Reflection

August 20th, 2020  | Family Stories  |  By LIZ CROOK

Today marks 10 years since we stepped out of the NICU after (at that point in time) the most rollercoaster 21 days of our lives and the story really started to unravel. I wanted to write something really eloquent and profound but quite frankly I’m too tired today 🤣 Whatever stage you’re at, its OK to have shitty days, its OK […]

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