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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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“As long as my baby is born healthy”

“As long as my baby is born healthy”

November 18th, 2021  | Family Stories  | News

A PICU Journey with HIE – by Amy Bannister DiGiacomo Expectant parents say this all the time. I probably said it too, until my second child, Oliver, was born. Now the phrase hits me in the chest when I hear it. Oliver’s birth was fine until it wasn’t. When he was four days old, he stopped breathing in my arms […]

Just Say HIE: Support Across the Miles

Just Say HIE: Support Across the Miles

November 8th, 2021  | Family Stories  | News

Join us as we share the stories of Julie Makow and Margie Jones, two HIE moms, who connected through Hope for HIE on the road to kidney transplants for their children. With acute kidney injury and HIE, many children may have impacted kidney function. While Julie and Margie did not leave near each other, through Hope for HIE, they were […]

Hope is an adventure – choosing hope and exploring new places

Hope is an adventure – choosing hope and exploring new places

August 9th, 2021  | Family Stories  | News  |  By Shawn P.

Every time someone posts in the Hope for HIE groups about daring to do hard things and going out of their comfort zone to find “Hope in the journey“, it always inspires me. So, this week we took a 9 day road trip across 3 states, to 5 National Parks, some state parks, and National Forests. THIS IS WHAT HOPE […]

Carving a Path for Your Child

Carving a Path for Your Child

June 29th, 2021  | Family Stories  | News  |  By Cindy Muzzi

Carve a path for your child.   Carve a path for your family.   Carve a path for you.   Don’t quit because things look different.   Take it slow, remember to breathe, laugh at yourself while doing it, and most of all…have fun.   Let others ask questions and stare.   We found that most just want to help […]

For the Bereaved Fathers

For the Bereaved Fathers

June 20th, 2021  | Family Stories  |  By Sara Baker Pendleton

For the bereaved fathers. A reflection on Nick, from Sara. Nic is a wonderful dad to every child God has blessed our family with, whether it be for one day or a lifetime, but it has always been a decision as parents for each one. Ansley, though…one day he came home from work and I told him, “We have a […]

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