fbpx
Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

BLOG

Medical Advisory Board Update – Welcome New Members

Medical Advisory Board Update – Welcome New Members

June 22nd, 2021  | News

Hope for HIE’s Medical Advisory Board welcomed Dr. Brittney Pryor Craig, pediatric neurologist and pediatric sleep specialist, Tamara Smith, pediatric occupational therapist and HIE mom, Dr. Carole Zangari, AAC specialist and professor, and Tina Moreno, AAC specialist to the organization in this advisory capacity.

Super Sibs – Resources for Siblings

Super Sibs – Resources for Siblings

June 22nd, 2021  | Resources

HIE shifts family dynamics — whether a child born with HIE is the first, and siblings come later, or is born somewhere in the middle, or is the last baby, it impacts the siblings of the family in a myriad of ways, no matter the outcome.

Hope for HIE is committed to fostering connections to help families navigate through the unique circumstances that pop up — whether that is medical complexities, balancing family time with therapies and appointments, bereavement support and more.

For the Bereaved Fathers

For the Bereaved Fathers

June 20th, 2021  | Family Stories  |  By Sara Baker Pendleton

For the bereaved fathers. A reflection on Nick, from Sara. Nic is a wonderful dad to every child God has blessed our family with, whether it be for one day or a lifetime, but it has always been a decision as parents for each one. Ansley, though…one day he came home from work and I told him, “We have a […]

Just Say HIE Podcast New Episode – “Connecting with Worldwide Support”

Just Say HIE Podcast New Episode – “Connecting with Worldwide Support”

June 17th, 2021  | Family Stories

Join us as we interview Shiru Wanjiru to learn more about her HIE story and connection, finding support, ideas for advocacy, and the need for collaboration to improve access to equipment in areas of disparity. Learn about the nuances of her journey and the connections that have helped her advocate for cultural change and the reduction of stigma surrounding disability. […]

Monica Arroyo, MD, joins the Medical Advisory Board

Monica Arroyo, MD, joins the Medical Advisory Board

May 25th, 2021  | News

We are excited to welcome Dr. Monica Arroyo, pediatric neurologist, to the Medical Advisory Board bringing her expertise in neonatal neurocritical care to enhance communication and whole-family care and support as collaborations are built through the board initiatives. Her full bio is below. Dr. Monica Arroyo is an attending Pediatric Neurologist at Joe di Maggio Children’s Hospital in Hollywood, Florida. […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

SIGNUP

Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.

  • This field is for validation purposes and should be left unchanged.