You don’t want to be me. And I get it. There was a time I didn’t want to be me either. I was terrified that my baby girl wouldn’t “beat the odds” or “defy the doctors.” I wanted to believe that she would “prove all those specialists wrong,” the ones who used terms like severely affected and cerebral palsy. I […]
In 2015, when our son, Grey, was born, there were not many interventions available to neonatologists to help lessen the brunt of an HIE injury. In fact, we had to make a decision within our son’s first two hours of life to be transferred from what we thought was a high-level NICU to a nearby university hospital so that our […]
The Hustle for Hope 5K is one of many activities taking place throughout the month of April, HIE Awareness Month, to increase awareness, education, and support of Hypoxic Ischemic Encephalopathy through Hope for HIE, the premiere organization dedicated to awareness, education and support. Hope for HIE chose the virtual format to meet the needs of its global community, allowing for […]
Two little boys with the same name and an HIE diagnosis were born days apart, but thousands of miles apart. Once their parents met through Hope for HIE, those miles weren’t going to stop them from bonding and eventually meeting in person. Valerie, who lives in the U.S., and Tabbi, who lives in Australia, met through the Hope for HIE […]
My Life as a Fraud (Posted on behalf of the original author anonymously) Most of my life I wore my heart on my sleeve. I was an open book and comfortable being authentic. I had two degrees and a successful marketing career. I made friends easily and was blissfully confident in myself and my abilities. I had always worked hard, […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
