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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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November is Epilepsy Awareness Month

November is Epilepsy Awareness Month

November 20th, 2023  | Epilepsy  | News

Epilepsy is a common issue affecting about 50-60% of the children with HIE (hypoxic ischemic encephalopathy), a condition that occurs when a newborn or child’s brain doesn’t get enough oxygen. This can result in different types of seizures, from more common and manageable ones to rarer and more challenging forms. Having epilepsy can be worrying, but it’s essential to know […]

‘Tis the Season for Summer Camp Registration

‘Tis the Season for Summer Camp Registration

November 17th, 2023  | News

As the holiday season fills the air with scents of cinnamon, pine, or freshly baked cookies, it might seem unusual to start thinking about upcoming summer camp experiences. But believe it or not, the time to plan and register for these enriching opportunities is now!  And just as the holiday season has its distinctive traditions, summer camps also offer a unique […]

Supporting families facing loss from HIE

Supporting families facing loss from HIE

November 16th, 2023  | HIE Loss  | News

Losing a child is an indescribable pain, and when that loss is due to a condition like hypoxic ischemic encephalopathy (HIE), it can be especially devastating for parents. During such challenging times, extended family and friends often want to provide support but may struggle with knowing the best ways to offer assistance. Understanding how to be helpful to parents who […]

Meet Hope for HIE’s 1:1 Peer Mentors

Meet Hope for HIE’s 1:1 Peer Mentors

November 13th, 2023  | News

Hope for HIE’s Peer Mentorship Program acts as a cornerstone of our commitment to fostering connection and support within the HIE community. Under the guidance of our dedicated social worker, Haley Thomas, our program offers 1:1 peer support through a remarkable team of over a dozen trained and experienced mentors. These mentors are diverse and vital members of our community, […]

Decoding FDA Designations in Health Information

Decoding FDA Designations in Health Information

November 10th, 2023  | Advocacy  | News

In the complex world of healthcare, understanding FDA classifications is crucial for making informed decisions. The United States Food and Drug Administration (FDA) plays a vital role in ensuring the safety and effectiveness of medical products, but the distinctions between FDA approval, FDA clearance, FDA authorization, and FDA de novo, along with the impact of marketing language, can be challenging. […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

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