As any parent may attest, there are times throughout the year when supporting your child’s schoolwork can cause stress. After all, when — no — why did they change math? As a parent or caregiver of a medically complex child who may undergo several planned or unplanned hospitalizations, you may know all too well the stress that comes with navigating […]
As we close out 2023, it’s amazing to take a moment before digging into our full, comprehensive Impact Report and looking at the HIElights of a banner year for our organization. It included a significant investment and expansion of our support programs and services, advocacy and collaboration in research. Without your support, we cannot do this work. Take a look […]
Hope for HIE was thrilled to talk to our Medical Advisory Board member, Dr. Adam Numis (pediatric neurologist and epilepsy specialist), to learn about updates regarding several Neonatal Seizure Registry (NSR) studies. These studies — some of which have concluded and others which are still in progress — will help us understand neonatal seizures, their relationship with HIE, and the […]
At Hope for HIE, we recognize that navigating the complexities of HIE can go beyond medical care. That’s why we’ve assembled a dedicated team to offer comprehensive support to all family members, including our kiddos with medical complexities and their siblings. Annie Gunning, our certified child life specialist, recently engaged in a Q&A session aimed at equipping parents with valuable […]
In the world of Hope for HIE, there’s an incredible community of families who not only navigate the challenges of this journey, but also extend their support, connection, gifts, and stories to uplift others. Each has a remarkable story to share about their “why” — volunteering their time and hearts to Hope for HIE, making a positive impact on countless […]
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