After hearing from thousands of families that sleep issues are one of the top unmet needs of our community across all outcomes and impacts, Dr. Renée Shellhaas, a pediatric neurologist and researcher, principal investigator of the Neonatal Seizure Registry, and one of Hope’s esteemed Medical Advisory Board members, and her team launched a survey for our community that aimed at […]
Q&A with Dr. Lana Chalak, Dr. Kenji Cunnion, Dr. Nikki Robertson, and Dr. Brian Kalish We’ll start with where we are. HIE is not a one-size-fits-all condition, and there is no one-size-fits-all treatment approach. Aside from cooling, which has only been considered the standard of care for the last two decades and is not universally available, equitable, and effective in […]
Navigating the complexities of HIE can often feel like wading through a thicket of uncertainties and questions. Families can spend a lot of time and resources to discern the root cause of the diagnosis, often amidst a tangle of information and misperceptions. It’s a journey that requires delving into the details, understanding the nuances, and working closely with medical teams […]
Our families are all too familiar with the agonizing “wait and see” game that comes with an HIE diagnosis. The uncertainty surrounding our child’s long-term impacts, outcomes, and quality of life is a harsh reality we grapple with daily. We wait for results, we wait for researchers to uncover new therapeutic interventions, and we wait for data that could offer […]
No matter its length, whether it’s a NICU stay, PICU stay, or hospitalization, the experience is often accompanied by trauma, and our HIE families want an anchor amidst the storm. In our recent conversation with Dr. Latrice L. Dowtin, Co-Chair of the National Network of NICU Psychologists, founder and clinician at PlayfulLeigh Psyched, and Hope for HIE Medical Advisory Board […]
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