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Transitioning from the NICU to Home – What You Need to Know about Seizures

Transitioning from the NICU to Home – What You Need to Know about Seizures

November 8th, 2021  | Epilepsy  | HIE Education  | News  | Resources

What do families need to know when they are getting discharged from the NICU after HIE about epilepsy? A few things! HIE is the top cause of neonatal seizures, and can lead to various more common, and rare, seizure disorders and epilepsy. Knowledge is empowerment, during a time where things feel very much out of control. We think of empowering […]

Surviving the Holidays

Surviving the Holidays

December 23rd, 2019  | HIE Education  |  By ANN GOELLER

The holidays can be a hard time for families of children with special needs. Running around to visit family, often toting extra supplies with you, talking about the realities our children face and playing the never-ending comparison game when being around other children all adds up to extra stress. Add that to the extra to-do list of holiday shopping, cooking […]

The latest in HIE treatment research

The latest in HIE treatment research

February 5th, 2019  | HIE Education  |  By NICK BURTON

In 2015, when our son, Grey, was born, there were not many interventions available to neonatologists to help lessen the brunt of an HIE injury. In fact, we had to make a decision within our son’s first two hours of life to be transferred from what we thought was a high-level NICU to a nearby university hospital so that our […]

About Tagging Me in That Post…

About Tagging Me in That Post…

October 22nd, 2015  | Advocacy  | Care  | HIE Education  | Special Needs  |  By KARISSA SHEPHERD

A few months ago, a post made the rounds about a boy with Cerebral Palsy completing a triathlon. What a wonderful achievement for that boy to complete such an intensely physical feat, seemingly against the odds! But with the sharing of that video, came the onslaught of beautiful, well-meaning friends who kept tagging me on that photo and sharing the […]

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