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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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New Opportunities to Participate in Research

New Opportunities to Participate in Research

July 19th, 2024  | News  | Research

We are sharing three opportunities to participate in research that may interest our community. More information about each study is available on our Clinical Trial & Research Hub. Parental Feedback for Neonatal Resuscitation (SURV1VE trial): A new protocol for neonatal CPR shows promise to improve outcomes and the study team is looking for parents perspectives on communication, enrollment and consent […]

Evaluating Research Articles: A Question Prompt Tool

Evaluating Research Articles: A Question Prompt Tool

July 11th, 2024  | Advocacy  | News  | Research

Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.

“I read this on PubMed…”: Navigating Research Articles

“I read this on PubMed…”: Navigating Research Articles

July 11th, 2024  | Advocacy  | News  | Research

Doing your own research also involves building health literacy skills, and looking beyond headlines for HIE – hypoxic ischemic encephalopathy.

Exploring HIE and Sleep: Q&A with Dr. Renée Shellhaas

Exploring HIE and Sleep: Q&A with Dr. Renée Shellhaas

July 11th, 2024  | HIE Education  | News  | Research  | Resources

After hearing from thousands of families that sleep issues are one of the top unmet needs of our community across all outcomes and impacts, Dr. Renée Shellhaas, a pediatric neurologist and researcher, principal investigator of the Neonatal Seizure Registry, and one of Hope’s esteemed Medical Advisory Board members, and her team launched a survey for our community that aimed at […]

Building a Community Culture of Research

Building a Community Culture of Research

June 18th, 2024  | HIE Education  | News  | Research  | Resources

Q&A with Dr. Lana Chalak, Dr. Kenji Cunnion, Dr. Nikki Robertson, and Dr. Brian Kalish We’ll start with where we are. HIE is not a one-size-fits-all condition, and there is no one-size-fits-all treatment approach. Aside from cooling, which has only been considered the standard of care for the last two decades and is not universally available, equitable, and effective in […]

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