fbpx
Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

BLOG

Resources

Getting fitted for orthotics

Getting fitted for orthotics

September 29th, 2017  | Resources  |  By BETSY PILON

For some of our HIE children, some type of orthotic (sometimes called a brace) may be necessary to help with development, ambulating and balance. There are a few different types of orthotics that may be considered. For some children, simply a shoe insert might be a good tool. For others, a solid or articulated (hinged) Ankle-Foot orthosis (AFO), or a short Supra-Malleolar […]

What I learned from healing in motion

What I learned from healing in motion

April 29th, 2017  | Resources  |  By ANN GOELLER

What started as a personal journey turned into a movement to help parents process their grief. Becky Kerrins wanted a way to both honor her daughter’s 69 days in the NICU and try to work through her grief over her HIE injury.   She decided to take that energy and use it in a new workout: kickboxing. So for each […]

How to be an advocate

April 10th, 2017  | Resources  |  By ANN GOELLER

As parents to children with special needs, we have a lot of roles: caregiver, nurturer, juggler But one of the most important ones is advocate. We advocate for our children at school, with medical providers, with therapists, with insurance companies and sometimes with the decision makers in our local, state and federal governments. Advocacy is so important for our kids […]

A new resource for HIE families

September 21st, 2016  | Resources  |  By ANN GOELLER

For many of our families, the cooling process is one of the first steps of their HIE journey. That time, hours after birth or the injury of your little one, is very uncertain and filled with questions. Several months ago, Dr. Pia Wintermark, a neonatologist and researcher at Montreal Children’s Hospital in Canada, came to Hope for HIE with a […]

SIGN UP

  • This field is for validation purposes and should be left unchanged.

SIGNUP

Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.

  • This field is for validation purposes and should be left unchanged.