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Brooke Rakes, PhD(c), RN, RNC-NIC joins Medical Advisory Board

October 5th, 2020  |  By HOPE FOR HIE FOUNDATION

Hope for HIE’s Board of Directors and Medical Advisory Board is pleased to announce Brooke Rakes, PhD(c), RN, RNC-NIC to an appointment on our Medical Advisory Board. Brooke brings a wealth of knowledge, passion, and expertise to our MAB and we look forward to her contributions to help us move forward our mission. Brooke Rakes, PhD(c), RN, RNC-NIC is a […]

A Decade with HIE: A Mother’s Reflection

A Decade with HIE: A Mother’s Reflection

August 20th, 2020  | Family Stories  |  By LIZ CROOK

Today marks 10 years since we stepped out of the NICU after (at that point in time) the most rollercoaster 21 days of our lives and the story really started to unravel. I wanted to write something really eloquent and profound but quite frankly I’m too tired today 🤣 Whatever stage you’re at, its OK to have shitty days, its OK […]

Missing Noah’s Hammock in the time of COVID

April 28th, 2020  |  By MELISSA WALLER LONGSHORE

Life chillaxing on the hammock was beautiful… feet extended …free floating in pure air. Breeze at my back. Of all the things I miss about life before quarantine. I miss Noah’s hammock the most. He was never without it. Most never have taken any note of it. It took me 15 years to weave it. I picked each strand of […]

Supporting our loss families

April 20th, 2020  |  By ANN GOELLER

Today is HIE Remembrance Day, a day to remember and honor those lost to HIE. Hope for HIE wanted to create a day dedicated to the little ones who lost their lives due to HIE and their families, and selected April 20 as that day. Today, we share stories of those children, reflect on their lives, and create a wave […]

Hope for HIE’s Statement on COVID-19

March 16th, 2020  |  By HOPE FOR HIE FOUNDATION

We know now is a difficult time for all as we try to navigate through the COVID-19 pandemic. As we serve a global community, we want to share some insight, guidance, and reassurance to our families. We have heard from many of you that you are anxious, nervous and scared. We know you have questions about how to get through […]

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