Waiting. Watching. Hoping. Waiting some more. Watching. Waiting. Hoping. That’s what this HIE journey is all about. And it’s what makes it so damn hard. One day, you’re minding your own business enjoying your life with your head in the clouds, and the next minute your world, your hopes and your dreams are shattered by your child’s hypoxic ischemic encephalopathy […]
For the fourth year in a row, Hope for HIE held 10 Days of Giveaways, where families can enter drawings for giveaways ranging from equipment to gift cards. Through these giveaways, we hope to make life a little easier for our families affected by HIE. This year, we were able to give 44 families a little extra HOPE for the […]
Dear Hope for HIE community, 2019 was an incredible year for our organization. We grew to serve over 5,000 families worldwide, which brought upon wider recognition from our clinical partners, opening doors to collaboration. Recognized by Facebook for Community Building We began the year being recognized by Facebook as a leading community on their platform at the 2019 Facebook Communities Summit, […]
There’s a famous poem that circulates often within the special needs community called “Welcome to Holland”. Many of our families find solace in that poem, and many do not, and a few have created their own. Here’s Nick Burton’s version, “Welcome to the Island”. When you’re going to have a baby, it’s like planning a fabulous vacation trip—to Italy. You […]
In 2018, a member of Hope for HIE’s community connected our organization to TREND Community, a company that was started by two moms who had originally connected through a Facebook group dedicated to a specific diagnosis each of their children shared. Over the last several years, these two moms saw the qualitative data that was shared about the condition and was […]
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