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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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July is Disability Pride Month

July is Disability Pride Month

July 3rd, 2024

Hope for HIE – Hypoxic Ischemic Encephalopathy – recognizes and elevates Disability Pride Month in July

HIE Success Stories

HIE Success Stories

June 27th, 2024  | Advocacy  | Family Stories  | News

HIE Success Stories with Hypoxic Ischemic Encephalopathy

Introducing SOAR: Support for Children with HIE

Introducing SOAR: Support for Children with HIE

June 25th, 2024  | Advocacy  | Child Life Resources  | News  | Resources

We are thrilled to introduce the SOAR program, an exciting new initiative designed to support children as they grow into their lives with HIE. The program is the brainchild of Annie Gunning, Hope’s certified Child Life Specialist, who has been deeply involved in our community and responsive to the feedback and needs expressed by parents, particularly those who have shared […]

Building a Community Culture of Research

Building a Community Culture of Research

June 18th, 2024  | HIE Education  | News  | Research  | Resources

Q&A with Dr. Lana Chalak, Dr. Kenji Cunnion, Dr. Nikki Robertson, and Dr. Brian Kalish We’ll start with where we are. HIE is not a one-size-fits-all condition, and there is no one-size-fits-all treatment approach. Aside from cooling, which has only been considered the standard of care for the last two decades and is not universally available, equitable, and effective in […]

Child Life Series: Owning Their Story — Teaching Self-Advocacy Skills to Children with HIE

Child Life Series: Owning Their Story — Teaching Self-Advocacy Skills to Children with HIE

June 18th, 2024  | Advocacy  | Child Life Resources  | News  | Resources

Every child deserves the opportunity to navigate their path and confidently own their story, but for children with HIE, their path to self-advocacy can be uniquely challenging. That’s why Annie Gunning, Hope for HIE’s certified child life specialist, recently participated in a Q&A session aimed at equipping them with tools and strategies that will empower them to advocate for their […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

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