Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Welcoming Crystal Kostick to the Board of Directors

Welcoming Crystal Kostick to the Board of Directors

March 8th, 2021  | Advocacy

We are excited to announce that Crystal Kostick has joined the Hope for HIE Board of Directors. As a long time “super volunteer” at Hope, Crystal has been a member of the retreat planning committee, has served as a moderator of our Colorado subgroup, attended the 2019 Child Neurology Foundation Peer-to-Peer Support Training representing the organization, and has worked to […]

It’s time to Hustle for Hope

It’s time to Hustle for Hope

March 4th, 2021  | Advocacy  | Fundraising

We are hosting our 2nd annual Hustle for Hope 5K event for our worldwide community! This April, take part in the largest virtual event for HIE Awareness. Grab some friends and family, safely gather to complete the 5K by yourself or with a group, get some fun swag and promote HIE awareness.

Cerebral Palsy Awareness Month

Cerebral Palsy Awareness Month

February 28th, 2021  | Advocacy  | Cerebral Palsy

March is Cerebral Palsy Awareness Month

Cerebral palsy is one of the more common diagnoses from HIE. While HIE-acquired cerebral palsy only accounts for roughly 10-15% of all cerebral palsy causes, roughly 40% of children diagnosed with HIE will go on to be diagnosed with cerebral palsy.

We are sharing all about the connection between HIE and cerebral palsy during March, and sharing resources for our community to learn more.

Medical Advisory Board Update: Welcoming Drs. Dowtin & Chalak

Medical Advisory Board Update: Welcoming Drs. Dowtin & Chalak

February 5th, 2021  |  By HOPE FOR HIE FOUNDATION

We are excited to welcome two new members to our Medical Advisory Board, Dr. LaTrice L. Dowtin, perinatal mental health counselor, and Dr. Lina Chalak, pediatric neurologist and researcher. Both bios are available below. LaTrice L. Dowtin, PhD, LCPC, NCSP, RPT Dr. Dowtin is a Black cisgender woman who believes in the ongoing pursuit of humility and social justice. She […]

All About Tone: The Differences Between Spasticity, Dystonia, Rigidity and Low Tone

January 24th, 2021  |  By HOPE FOR HIE FOUNDATION

Spasticity, Dystonia, High Tone, Low Tone and more, are hot topics that are talked about with gross motor development, and often when a child may be diagnosed with Cerebral Palsy from HIE. We worked with Medical Advisory Board member, Ed Hurvitz, MD, pediatric physiatrist from the University of Michigan to help our families understand a bit more about each term. […]

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