Betsy Pilon, Executive Director of Hope for HIE, contributed to new American Clinical Neurophysiology Society clinical guidelines on indications for continuous EEG monitoring for babies at risk for neonatal seizures, recently published in the Journal of Clinical Neurophysiology. Dr. Courtney Wusthoff, lead author, wanted to ensure that patient-family perspectives were included in the guidelines, and many of the concerns shared […]
Hope for HIE is thrilled to welcome Jennifer Schaefer, CAPSW, to the team as our new Social Worker. Jen brings over 17 years of social work experience, with direct NICU experience spending the last seven years working for Children’s Hospital of Wisconsin’s Level IV NICU. In her role, Jen will be leading and managing support programming for HIE families, providing […]
Did you know there are currently ZERO published long-term follow up guidelines for neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy? Thanks to members of our Medical Advisory Board, and leadership of the Neonatal Special Interest Group through the Child Neurology Society, we have begun the process to start the development of long-term follow-up guidelines for HIE. We had OVER 120 child […]
The Jarett Family beautifully illustrates how connection and support can lead to meaningful moments that honor every unique HIE journey. At their wedding, Amelia’s aunt and uncle chose to forgo traditional wedding favors and instead made a donation to Hope for HIE in Amelia’s honor, with Amelia serving as the flower girl. To further raise awareness, a framed display with […]
We’re continually inspired by remarkable families like the Arnall Family, who have turned their personal journey with HIE into a powerful platform for raising awareness. Not only has Braedn been deeply involved in spreading awareness about HIE within his local gym community, but he has also made a significant impact as an HIE Awareness Month Ambassador. By sharing Hope’s informational […]
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