Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy


Katie’s Story: Journeying with Jolene

April 30th, 2022  | HIElights of Hope

Katie lives in Virginia with her husband, Robbie, and her four children. Her three daughters are ten, three, and one and a half, and her son is six. Jolene, her youngest, is her HIE baby. During her pregnancy with Jolene, Katie was confident that she would be born healthy and full of life like her older three children. Everyone was […]

Brittany’s Story: Weathering the Storm

April 30th, 2022  | HIElights of Hope

“The smoothest stones have weathered the roughest storms.” Brittany is no stranger to loss. She had to pick up the pieces of her life after her only sister was killed in 2001, and then again when a close friend died in a scooter accident two weeks before the birth of her first child, Dreaven. But it wasn’t until Dreaven loomed […]

Abigail’s Story: Little Llama Lu

April 30th, 2022  | HIElights of Hope

Abigail lives in Idaho Falls, Idaho with her husband, Kendall, and five children. Her two boys are fourteen and twelve years old, while her three girls are eight, six, and one. Because Abigail’s pregnancies and hospital deliveries with her four older children were all uneventful, Abigail never imagined anything would go wrong during the delivery of her fifth child, Luthien […]

Emily and Matt’s Story: Be Hopeful and Devastated

April 30th, 2022  | HIElights of Hope

Emily and Matt live in Atlanta, Georgia, with their daughter, Nora, who was born in 2017. After their son, Lewis, was born in February of 2021, they never envisioned that they would say goodbye two weeks later. They never envisioned that Nora would never have the chance to physically meet her baby brother. They never envisioned that the range of […]

Dr. Sue Hall’s Story: Providing Psychosocial Support in the NICU

April 30th, 2022  | HIElights of Hope

Dr. Sue Hall serves on Hope for HIE’s Medical Advisory Board and has been a neonatologist for over thirty years. Before that, she worked as a master’s level social worker. She completed training in pediatrics and neonatology at the Children’s Mercy Hospital in Kansas City, Missouri, before joining the faculty at UCLA’s David Geffen School of Medicine, where she was […]


One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

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