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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Just Say HIE Episode: Hope for the Holidays

Just Say HIE Episode: Hope for the Holidays

November 17th, 2021  | Advocacy  | Fundraising  | Give Hope  | News

Join us as David Ford, president of Hope for HIE’s board of directors, shares his HIE story, his calling to give back to Hope for HIE, and encouragement for others to get involved in a myriad of ways as the giving season begins. Learn how to get started with Giving Tuesday, Hope for HIE’s 100 for $100 campaign, and the […]

Hope for HIE Annual Ornament Now Available

Hope for HIE Annual Ornament Now Available

November 14th, 2021  | News

NOW AVAILABLE! Casual Crafts by Mrs. White has once again designed our annual ornament. For $12 ($8 for the ornament, $4 for shipping), you can adorn your tree, or hang this in a special place in your house! These make excellent gifts for teachers, therapists, friends and family members! And, $2 of each purchase goes back to Hope for HIE. […]

Hope for HIE’s Parent Support Hub

Hope for HIE’s Parent Support Hub

November 13th, 2021  | News

Hope for HIE Parent Support Hub – The Heart of our Support Network Hope for HIE connects over 7,000 families through over 100 topic, location and outcomes-based support groups here on Facebook. What has traditionally been called the “main parent forum” is now called the Parent Support Hub. This group is the HUB of activity, and the heart of our […]

Epilepsy Diagnosed in Childhood after HIE

Epilepsy Diagnosed in Childhood after HIE

November 10th, 2021  | Epilepsy  | News  | Resources

There is a cohort of kids who will persistently need medications out of the NICU, and there are children who will not have persistent seizures, or experience neonatal seizures at all, but develop epilepsy later in childhood. There are a few nuances for what is most typically seen with these epilepsy cases, and some things to ask about (some of […]

Transitioning from the NICU to Home – What You Need to Know about Seizures

Transitioning from the NICU to Home – What You Need to Know about Seizures

November 8th, 2021  | Epilepsy  | HIE Education  | News  | Resources

What do families need to know when they are getting discharged from the NICU after HIE about epilepsy? A few things! HIE is the top cause of neonatal seizures, and can lead to various more common, and rare, seizure disorders and epilepsy. Knowledge is empowerment, during a time where things feel very much out of control. We think of empowering […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

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