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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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HIE Awareness Ambassador: Sam Villeneuve

HIE Awareness Ambassador: Sam Villeneuve

April 25th, 2023  | Family Stories

Meet Sam Villeneuve, one of our HIE Awareness Ambassadors from Wisconsin, USA!    What is your story and connection with HIE?  Bren was born unresponsive and was resuscitated for 15 minutes. He spent 19 days in the NICU where we heard lots of diagnoses, potential outcomes, and things we needed to do. It was also in the NICU where we […]

HIE Awareness Ambassador: Nisha Ramasamy

HIE Awareness Ambassador: Nisha Ramasamy

April 25th, 2023  | Family Stories

Meet Nisha Ramasamy, one of our HIE Awareness Ambassadors from San Jose, California!  What is your story and connection with HIE?  Our Brave Warrior  I would like to share an inspiring story about my cute little warrior until her last breath. My lovely brave daughter is named Tvarika Dileeshvar. Born on March 9, 2022, and rested in peace under Angel […]

HIE Awareness Ambassador – Khadiajah Holmes

HIE Awareness Ambassador – Khadiajah Holmes

April 21st, 2023  | Family Stories  | News

Meet Khadijah Holmes, one of our HIE Awareness Ambassadors from Orlando, Florida.    What is your story and connection with HIE?  Our pregnancy went just fine and then the life I had planned was suddenly shattered at 39 weeks. My daughter was diagnosed with HIE at birth. Our lives were forever changed. As time progressed, I learned that it changed […]

HIE Awareness Ambassador – Tanya MacNeil

HIE Awareness Ambassador – Tanya MacNeil

April 21st, 2023  | Family Stories  | News

Meet Tanya MacNeil, one of our HIE Awareness Ambassadors from Eastern Passage, Canada!    What is your story and connection with HIE?  Beatrix suffered HIE at birth, she ended up in the NICU for a month. She was the sickest kiddo there, and we were repeatedly told there was no hope. When we refused to withdraw care, they offered the […]

Argenica Therapeutics & Hope for HIE Partner for Therapeutic Development Support

Argenica Therapeutics & Hope for HIE Partner for Therapeutic Development Support

April 21st, 2023  | News

ARGENICA THERAPEUTICS (ASX: AGN) PARTNERS WITH GLOBAL HYPOXIC ISCHAEMIC ENCEPHALOPATHY (HIE) ADVOCACY ORGANISATION HOPE FOR HIE AS ARG-007 MOVES CLOSER TO CLINICAL TRIALS Perth, Western Australia: April 19th, 2023, – Argenica Therapeutics Limited (ASX: AGN), a biotechnology company developing novel neuroprotective therapeutics, announces its support and partnership with Hope for HIE (Hypoxic Ischemic Encephalopathy), a global patient advocacy and support organisation, […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

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