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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Dr. Bhooma Aravamuthan’s Story: Taking it a Few Goals at a Time

April 30th, 2022  | HIElights of Hope

After her uncle was diagnosed with Parkinson’s disease, Bhooma Aravamuthan was inspired to do neuroscience research that would be directly relevant to people like her uncle, and as quickly as possible. When she entered medical school at Washington University in St. Louis, Bhooma was convinced she wanted to specialize in adult movement disorders. But during her clinical encounters, she realized […]

Dr. Beth Robinson Swartz’s Story: Providing Families With A Medical Home

April 30th, 2022  | HIElights of Hope

Dr. Beth Robinson Swartz is a pediatrician on Hope for HIE’s Medical Advisory Board. She has practiced for over thirty years in both the private practice and hospital settings, spending a large portion of her career affiliated with the Henry Ford Health System in West Bloomfield, Michigan. Now, as Beth reflects back upon her time as a pediatrician as she […]

Tracy’s Story: Remembering Her “Big Boy”

April 30th, 2022  | HIElights of Hope

Tracy has two older boys from a previous marriage, Spencer and Hunter, who are eighteen and fifteen years old respectively. In her current relationship with her partner, Derrick, she has a seven-year-old daughter, Mona, and her HIE baby, Chandler, born in 2017. Tracy was used to the exciting chaos that comes with having a large family with children of such […]

Sarah’s Story: Adapting Toys & To A New Normal

April 30th, 2022  | HIElights of Hope

In 2017, Sarah and Russell welcomed their first child, Stella, into the world. During her pregnancy with Stella, Sarah was always a little on edge, as she had previously had a miscarriage at fourteen weeks. For the most part, though, there didn’t seem to be major complications with her pregnancy. At thirty-five weeks, Sarah began to experience back discomfort, so, […]

Sam’s Story: Fear is Not an Option

April 30th, 2022  | HIElights of Hope

“She taught me that fear is not an option.” -Diane von Furstenberg Sam and her husband, Drew, have two children, Bren and Sage. Bren, their son with HIE, is five years old, while Sage, their post-HIE baby, is two. During Sam’s pregnancy with Bren, everything went smoothly, and she and Drew were inexorably excited to finally become parents. Sam went […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

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