Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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June Newsletter Now Available

June Newsletter Now Available

June 22nd, 2021  | News

HOPE CONNECTIONS NEWSLETTER – JUNE ISSUE In this issue: Navigating risk with kids activities and COVID19 Community call for action: Share photos, artwork and more Sleep webinar with Dr. Pryor Craig Just Say HIE podcast episodes Neonatal Seizure Registry update and enrollment Medical Advisory Board Update Partners in Hope program Read Here

Neonatal Seizure Registry Update and Enrollment

Neonatal Seizure Registry Update and Enrollment

June 22nd, 2021  | News

FAMILIES ENROLLED IN THE NEONATAL SEIZURE REGISTRY: Enroll Now in the Follow Up Study If your child participated in the Neonatal Seizure Registry study, they are now eligible for a seizure follow-up study. We know as a community how important tracking long term outcomes is, and this new study follows development in children 3 and older. The aim of the […]

Medical Advisory Board Update – Welcome New Members

Medical Advisory Board Update – Welcome New Members

June 22nd, 2021  | News

Hope for HIE’s Medical Advisory Board welcomed Dr. Brittney Pryor Craig, pediatric neurologist and pediatric sleep specialist, Tamara Smith, pediatric occupational therapist and HIE mom, Dr. Carole Zangari, AAC specialist and professor, and Tina Moreno, AAC specialist to the organization in this advisory capacity.

Super Sibs – Resources for Siblings

Super Sibs – Resources for Siblings

June 22nd, 2021  | Resources

HIE shifts family dynamics — whether a child born with HIE is the first, and siblings come later, or is born somewhere in the middle, or is the last baby, it impacts the siblings of the family in a myriad of ways, no matter the outcome.

Hope for HIE is committed to fostering connections to help families navigate through the unique circumstances that pop up — whether that is medical complexities, balancing family time with therapies and appointments, bereavement support and more.

For the Bereaved Fathers

For the Bereaved Fathers

June 20th, 2021  | Family Stories  |  By Sara Baker Pendleton

For the bereaved fathers. A reflection on Nick, from Sara. Nic is a wonderful dad to every child God has blessed our family with, whether it be for one day or a lifetime, but it has always been a decision as parents for each one. Ansley, though…one day he came home from work and I told him, “We have a […]

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