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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Support in the hardest times

Support in the hardest times

December 6th, 2016  | Family Stories  |  By ANN GOELLER

When she had to go through the toughest decisions and emotions in her life, Lauren Macke found support from a group of parents who had been there. Lauren’s son Jonah was born early and went without oxygen for 14 minutes. He was diagnosed with HIE and went through cooling therapy. Testing showed his brain damage was extensive, and Lauren was […]

A big thank you!

A big thank you!

December 1st, 2016  | Fundraising  |  By ANN GOELLER

As a growing organization, every dollar raised for Hope for HIE counts. That’s why we want to send a huge thank you to the Modified Dolls, a fellow nonprofit agency, that raised $1,200 to help support our mission to provide support for families impacted by HIE. The Modified Dolls selected Hope for HIE as their featured organization for the month […]

Finding hope

Finding hope

November 29th, 2016  | Family Stories  |  By ANN GOELLER

In the days after their son was born, the news kept getting worse. Baby Cole suffered HIE at birth after getting stuck in the birth canal and aspirating meconium. He was having seizures, he needed emergency cooling treatment hours away from home and tests of his brain activity weren’t looking good. Sara Ames Saltzman felt alone and terrified. She didn’t […]

A new community

A new community

November 22nd, 2016  | Family Stories  |  By ANN GOELLER

Throughout our lives, we form communities. Our hometown, our cliques of friends in school, our co-workers, our couples friends and then the families we want our kids to grow up with. I have been a part of some amazing communities in my life. And when my daughter suffered a birth injury, hypoxic ischemic encephalopathy or HIE, I needed another one […]

Have hope, will travel

Have hope, will travel

November 20th, 2016  | Family Stories  |  By ANN GOELLER

For one HIE mom, hope has taken her across the country this year. Betsy Pilon, president of the Hope for HIE foundation, has traveled from her home state of Michigan to Texas, New York and New Orleans so far this year, making her slogan for 2016 “Have hope, will travel.” For Betsy, the trips to meet other HIE families at […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

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