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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Become the HIE Roller – the first annual Hope for HIE Fundraising Competition

Become the HIE Roller – the first annual Hope for HIE Fundraising Competition

August 27th, 2016  | Fundraising  | Give Hope  |  By ANDREW CHRESTMAN

What is this? The “HIE Roller” is a coveted title that is earned. Hope for HIE started a fundraising competition, and whoever raises the most money in one year receives a prize package and the title of HIE Roller. Rules of the Game The rules are simple: Whoever raises the most money on behalf of Hope for HIE between Sept. […]

Always my family

Always my family

August 17th, 2016  | Family Stories  |  By AZIZIAH AZIZ

My HIE survivor (now angel) was Aafiyah, which in Arabic means health. My uterus and bladder ruptured during labor, which resulted in her severe HIE. She was born not breathing, and doctors quickly revived. I remember kissing her before she was rushed off to the NICU, and then I was put to sleep for the remainder of my surgery. The […]

The making of Hops for Hope

The making of Hops for Hope

August 16th, 2016  |  By ANN GOELLER

After years of talking about hosting a fundraiser, Andy and Sarah Chrestman finally decided they wanted to do it. After several weeks of planning, and a lot of sweat, they raised approximately $14,000 for Hope for HIE, beating their initial goal of $7,500. Their New Orleans event combined all their favorite things: drinking, fun, food and their son who is […]

For the new moms

For the new moms

August 13th, 2016  | Family Stories  |  By ANN GOELLER

To new moms: This picture popped up on my news feed. It’s a picture of my then 2 month old HIE son GMO; God’s Miracle On earth – GianRaul. He is now 4 years old. This picture was taken only days after we returned home from 1 month in the NICU and another month in a rehabilitation hospital. As I look […]

Having a child after HIE

Having a child after HIE

July 31st, 2016  | Family Stories  |  By AMY CUTLER

I always knew that I want to be a mom. I was lucky enough to grow up with two sisters and understood how important siblings are. After we got married, we waited a little bit of time before deciding that we wanted to begin our family and our journey to becoming parents. It was certainly not an easy one from […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

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