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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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All About Tone: The Differences Between Spasticity, Dystonia, Rigidity and Low Tone

All About Tone: The Differences Between Spasticity, Dystonia, Rigidity and Low Tone

January 24th, 2021  | Cerebral Palsy  | Resources  |  By Ed Hurvitz, MD

Spasticity, Dystonia, High Tone, Low Tone and more, are hot topics that are talked about with gross motor development, and often when a child may be diagnosed with Cerebral Palsy from HIE. We worked with Medical Advisory Board member, Ed Hurvitz, MD, pediatric physiatrist from the University of Michigan to help our families understand a bit more about each term. […]

Bhooma Aravamuthan, MD, DPhil joins the Medical Advisory Board

January 5th, 2021  | News  |  By HOPE FOR HIE FOUNDATION

We are excited to welcome Dr. Bhooma Aravamuthan, pediatric neurologist specializing in movement disorders, to our Medical Advisory Board. She will be working with Hope for HIE to bring more education to our community in the area of movement disorders, in particular dystonia, which has negative impacts on many children with HIE. Her full bio is below. Dr. Aravamuthan is an […]

2020 Year in Review

2020 Year in Review

December 31st, 2020

Dear Hope for HIE community, 2020 was an incredible year for our organization, despite the difficult year a global pandemic brought to each of us. We grew to serve over 6,000 families worldwide, which brought upon wider recognition from our clinical partners, opening more doors to collaboration. We celebrated six years as a 501c3 organization, and have the following highlights […]

Navigating a Plot Twist

Navigating a Plot Twist

December 23rd, 2020  |  By BETSY PILON

Just a few days before the Christmas holiday, my four year old and 8 year old children were buzzing with excitement. They begged us to have sleepovers in each other’s rooms, and we happily obliged, seeing their joy earlier in the year during the pandemic when they were looking for new adventures in an uncertain time. My husband turned back […]

Beth Robinson Swartz, MD joins Medical Advisory Board

December 9th, 2020  |  By HOPE FOR HIE FOUNDATION

We are very excited to welcome Dr. Beth Robinson Swartz, pediatrician, recently retired from Henry Ford Health System in Detroit, Mich., to our Medical Advisory Board. She will be working with Hope for HIE to represent the clinical pediatrician experience, supporting families with developmental concerns and disabilities. Her full bio is below. Beth Robinson Swartz, MD is a retired pediatrician, […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

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