Throughout our lives, we form communities. Our hometown, our cliques of friends in school, our co-workers, our couples friends and then the families we want our kids to grow up with. I have been a part of some amazing communities in my life. And when my daughter suffered a birth injury, hypoxic ischemic encephalopathy or HIE, I needed another one […]
For one HIE mom, hope has taken her across the country this year. Betsy Pilon, president of the Hope for HIE foundation, has traveled from her home state of Michigan to Texas, New York and New Orleans so far this year, making her slogan for 2016 “Have hope, will travel.” For Betsy, the trips to meet other HIE families at […]
I remember standing in our son’s bedroom the day after he was born and bracing myself for the real possibility that we would lose our first and only child. Kohler Henson Chrestman was born the previous day and, because of an abrupt lack of blood and oxygen to his brain, he was born with severe, global brain damage. The ensuing 24-hours were […]
To some, it looks like a new swing and a coating of asphalt. But to me, the improvements to my daughter’s school playground are so much more. The $5,000 project that teachers, students and families donated to meant that my little girl was valued at her school, and not overlooked. Her school understood the importance of helping her play alongside […]
NeoBrain, a Canadian group that worked with Hope for HIE on a video for families in the NICU after their babies suffered an HIE event, needs our help! They have entered their video into a competition, and if they win, the video would be viewed even more, helping spread awareness of HIE. Here is how you can help: Visit http://bit.ly/IHDCYHTalks2016 Watch […]
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