Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy


Loving your school

Loving your school

November 8th, 2016

To some, it looks like a new swing and a coating of asphalt. But to me, the improvements to my daughter’s school playground are so much more. The $5,000 project that teachers, students and families donated to meant that my little girl was valued at her school, and not overlooked. Her school understood the importance of helping her play alongside […]

Help spread awareness!

November 6th, 2016  |  By ANN GOELLER

NeoBrain, a Canadian group that worked with Hope for HIE on a video for families in the NICU after their babies suffered an HIE event, needs our help! They have entered their video into a competition, and if they win, the video would be viewed even more, helping spread awareness of HIE. Here is how you can help: Visit http://bit.ly/IHDCYHTalks2016 Watch […]

Meet me in New York

Meet me in New York

October 20th, 2016  |  By ANN GOELLER

Through 26 miles of walking, breakfast overlooking Central Park and plenty of New York-style pizza, two of the women who made Hope for HIE what it is today got to know each other a little better. Claire Greer, one of the founders of Hope for HIE, and Betsy Pilon, president of the board for the nonprofit organization, met up in […]

Enough is enough

Enough is enough

October 6th, 2016  | Family Stories  |  By JULIE KEON

I have been trotting on this path long enough to know that guilt will suck the life force out of you faster than anything. Keeping this in mind, I tend not to spend time in a pit of guilt when it comes to our beautifully complex daughter. However, every so often, there is one question that still finds its way […]

Healing in motion

Healing in motion

September 26th, 2016  | Family Stories  |  By BECKY KERRINS

HIE mom Becky Kerrins shares her story of how she embarked on her latest journey, Healing in Motion, and what it means to see other parents joining her. ——————————————- I got the idea for healing in motion one day while in kickboxing. I was thinking: how can I make my workouts more meaningful and keep myself motivated? I have been […]


One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

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