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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Super Siblings!

Super Siblings!

July 17th, 2016  | Family Stories  |  By ASHLEY HUFFMAN

Recently, we went to Florida Supercon, a comic convention, as a family. Our daughter was very excited because one of her idols, Alex Kingston, who is known for her roles on ER, Arrow and as River Strong in the show Doctor Who, was going to be there signing autographs. Amelie was buzzing with excitement as we neared her table, and squealed […]

Switch toy adapting 101

Switch toy adapting 101

June 30th, 2016  | Toys  |  By ANN GOELLER

Many of our kiddos struggle with motor skills, making playing with toys a challenge. Enter technology. Tons of toys can be adapted to work off a switch system, allowing kids to activate them using a large button or other device that is easier for them to set off than what is built into the toy. But, as with most things […]

Keeping cool this summer

June 28th, 2016  | Equipment  |  By ANN GOELLER

Summer is here, and as the temperatures rise, so do many parents’ concerns that their child will overheat. So many of our kiddos struggle to regulate their temperature, so keeping cool is a key concern. We asked our HIE parents what they use to keep their little ones cool during the heat of summer. In addition to cool foods for […]

Focus on what they CAN do

Focus on what they CAN do

June 18th, 2016  | Family Stories  |  By ASHLEY FIELDING

Is your child able to roll? Are they able to sit independently? Are they saying any words? Are they able to hold their own bottle? These are the questions I have to ask. It’s my profession, it’s my job, it’s how I determine whether someone’s child will qualify for services. But is it what I wish I had to ask […]

We’re partnering with The Mighty!

June 11th, 2016  |  By ANN GOELLER

We’re thrilled to announce a new partnership with The Mighty, a website focused on improving the lives of people facing disease, disorder, mental illness and disability by sharing their stories. We will now have our own home page on The Mighty and will be connected to the stories our families submit to be posted. With this partnership, we’ll be able to help even more people! Here’s an example […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

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