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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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For the new moms

For the new moms

August 13th, 2016  | Family Stories  |  By ANN GOELLER

To new moms: This picture popped up on my news feed. It’s a picture of my then 2 month old HIE son GMO; God’s Miracle On earth – GianRaul. He is now 4 years old. This picture was taken only days after we returned home from 1 month in the NICU and another month in a rehabilitation hospital. As I look […]

Having a child after HIE

Having a child after HIE

July 31st, 2016  | Family Stories  |  By AMY CUTLER

I always knew that I want to be a mom. I was lucky enough to grow up with two sisters and understood how important siblings are. After we got married, we waited a little bit of time before deciding that we wanted to begin our family and our journey to becoming parents. It was certainly not an easy one from […]

What I have learned: one year in

What I have learned: one year in

July 30th, 2016  | Family Stories  |  By NICOLETTE FRIEND

Faith is now 13 months old, and I wanted to put together some of “what we’ve learned” to share with you. She’s currently admitted for the 7th time since our 2 month NICU stay, which has given me the time to get this together. Faith is pretty severely affected and will probably be my forever baby. But regardless of future […]

Don’t forget about yourself

Don’t forget about yourself

July 27th, 2016  | Family Stories  |  By JESSICA BALESTRIN

Hey you. Yes you, with a 3-day-old hair-do and last night’s formula on your shirt. When was the last time you took care of yourself? When was the last time you were able to pause between breaths, feel your feet on the ground and truly relax? As special needs parents, we often push ourselves to our physical and emotional limits. […]

Finding your way through the darkness as a couple

Finding your way through the darkness as a couple

July 25th, 2016  | Family Stories  |  By JULIE KEON

My husband, Tim, and I celebrated our 17th wedding anniversary in June. This is a day of accomplishment and reflection especially as the years pass and we are faced with challenges many couples will never have to face. I can close my eyes and travel back in time to the 28 year old woman I was waking up on our wedding […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

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