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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Brooke Rakes, PhD(c), RN, RNC-NIC joins Medical Advisory Board

October 5th, 2020  |  By HOPE FOR HIE FOUNDATION

Hope for HIE’s Board of Directors and Medical Advisory Board is pleased to announce Brooke Rakes, PhD(c), RN, RNC-NIC to an appointment on our Medical Advisory Board. Brooke brings a wealth of knowledge, passion, and expertise to our MAB and we look forward to her contributions to help us move forward our mission. Brooke Rakes, PhD(c), RN, RNC-NIC is a […]

A Decade with HIE: A Mother’s Reflection

A Decade with HIE: A Mother’s Reflection

August 20th, 2020  | Family Stories  |  By LIZ CROOK

Today marks 10 years since we stepped out of the NICU after (at that point in time) the most rollercoaster 21 days of our lives and the story really started to unravel. I wanted to write something really eloquent and profound but quite frankly I’m too tired today 🤣 Whatever stage you’re at, its OK to have shitty days, its OK […]

Neonatal Seizure Registry Research Update

May 26th, 2020  | News  |  By HOPE FOR HIE FOUNDATION

The Neonatal Seizure Registry (NSR) is an alliance of nine US centers that have worked together since 2012 to study the causes and consequences of neonatal seizures. Over the past four years, the NSR team has recruited and followed 300 children with neonatal seizures to understand how to the length of treatment may influence development and the risk of epilepsy, as well […]

Neurology Minute Podcast: HIE Awareness

May 4th, 2020  | News  |  By HOPE FOR HIE FOUNDATION

Hope for HIE was featured on the American Academy of Neurology podcast “Neurology Minute” for HIE Awareness Month. Take a listen below!

Missing Noah’s Hammock in the time of COVID

April 28th, 2020  |  By MELISSA WALLER LONGSHORE

Life chillaxing on the hammock was beautiful… feet extended …free floating in pure air. Breeze at my back. Of all the things I miss about life before quarantine. I miss Noah’s hammock the most. He was never without it. Most never have taken any note of it. It took me 15 years to weave it. I picked each strand of […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

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