I remember standing in our son’s bedroom the day after he was born and bracing myself for the real possibility that we would lose our first and only child. Kohler Henson Chrestman was born the previous day and, because of an abrupt lack of blood and oxygen to his brain, he was born with severe, global brain damage. The ensuing 24-hours were […]
To some, it looks like a new swing and a coating of asphalt. But to me, the improvements to my daughter’s school playground are so much more. The $5,000 project that teachers, students and families donated to meant that my little girl was valued at her school, and not overlooked. Her school understood the importance of helping her play alongside […]
NeoBrain, a Canadian group that worked with Hope for HIE on a video for families in the NICU after their babies suffered an HIE event, needs our help! They have entered their video into a competition, and if they win, the video would be viewed even more, helping spread awareness of HIE. Here is how you can help: Visit http://bit.ly/IHDCYHTalks2016 Watch […]
Through 26 miles of walking, breakfast overlooking Central Park and plenty of New York-style pizza, two of the women who made Hope for HIE what it is today got to know each other a little better. Claire Greer, one of the founders of Hope for HIE, and Betsy Pilon, president of the board for the nonprofit organization, met up in […]
I have been trotting on this path long enough to know that guilt will suck the life force out of you faster than anything. Keeping this in mind, I tend not to spend time in a pit of guilt when it comes to our beautifully complex daughter. However, every so often, there is one question that still finds its way […]
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