Did you know there are currently ZERO published long-term follow up guidelines for neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy? Thanks to members of our Medical Advisory Board, and leadership of the Neonatal Special Interest Group through the Child Neurology Society, we have begun the process to start the development of long-term follow-up guidelines for HIE. We had OVER 120 child […]
Understanding Blood Gases: A Guide for Parents of Babies with HIE When your baby is diagnosed with hypoxic-ischemic encephalopathy (HIE), it can feel overwhelming to navigate the medical information and terminology. One term you may hear frequently in the neonatal intensive care unit (NICU) is “blood gases.” Understanding what blood gases are and why they are important can help you […]
We don’t know about you, but we think it’s time to recognize, celebrate, and empower the unsung HIEroes of the HIE community — the brothers and sisters who stand strong alongside their HIE siblings and those they remember who have passed. Sometimes, our Super Sibs can bear a significant load: they are asked to take on a lot, go forth […]
In the world of Hope for HIE, we believe in the power of community, the strength of unity, and the unwavering resilience of families navigating the challenges of neonatal and pediatric-acquired HIE. And what better way to embody these principles than becoming a 2025 Hustle for Hope 5K Host? We’ve witnessed the profound impact of our 5K fundraiser on our […]
PEDIATRIC NEUROLOGY ORGANIZATIONS PARTNER, RECEIVE FUNDING TO BUILD REGISTRY FOR NEONATAL HYPOXIC ISCHEMIC ENCEPHALOPATHY Cerebral Palsy Research Network, Hope for HIE and Newborn Brain Society announce a partnership and receipt of funding to develop a patient registry for neonatal hypoxic ischemic encephalopathy (HIE). Investigators Danielle Guez Barber, MD, PhD, neonatal neurologist at Colorado Children’s Hospital, and Zach Vesoulis, MD, neonatologist […]
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