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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Child Life Series: Family Advocacy

Child Life Series: Family Advocacy

April 14th, 2024  | Advocacy  | Child Life Resources  | News  | Resources

Advocacy is important; there’s no doubt about it. But let’s face it: putting it into action can be hard, especially when navigating the complexities of medical care. Between emotions running high, the need to digest large amounts of not-so-easy-to-understand information, and the pressure to make quick but responsible decisions, it’s totally normal to feel overwhelmed. Plus, add in the uncertainty, […]

AI & Family Education: Q&A with Dr. Eric Peeples

AI & Family Education: Q&A with Dr. Eric Peeples

April 9th, 2024  | Advocacy  | HIE Education  | News  | Resources

Between our phones, laptops, computers, and the myriad of other devices we use daily, it’s almost as if we have a virtual companion at our fingertips, ready to assist with any HIE-related questions or concerns, day or night. It’s natural to turn to digital tools for research and support, but here’s the catch: while AI offers convenience, it doesn’t always […]

Medically-Complex Families: Give Your Input!

Medically-Complex Families: Give Your Input!

April 3rd, 2024  | Advocacy  | News

So many of our medically complex kids get recurrent respiratory infections. Researchers at Vanderbilt University are wanting to hear YOUR experience as a parent on how to improve care! The team is looking at getting input from families to develop patient and family-centered outcome measures. Details below! Who: US-based families of medically complex kids who have been hospitalized for respiratory illnesses […]

2024 HIE Awareness Month – Transforming Hope

2024 HIE Awareness Month – Transforming Hope

April 1st, 2024  | Advocacy  | News

Welcome to 2024 HIE Awareness Month! We come together every April – families, clinicians, researchers, partners, supporters and others in our global community – to spread awareness into the world about neonatal and childhood acquired Hypoxic Ischemic Encephalopathy. This year, the community theme is TRANSFORMING HOPE. Our community is over 10,000 families, researchers, clinicians, and community members strong, across all ages and […]

What is “Baseline”?

What is “Baseline”?

March 21st, 2024  | Advocacy  | Care  | News

Hypoxic-ischemic encephalopathy (HIE) is a condition that affects infants and children with many causes due to reduced oxygen supply before, during or after birth, and in childhood, leading to potential neurological challenges. One crucial aspect of managing HIE in children is understanding their baseline, which refers to their typical level of functioning or development. This concept plays an important role […]

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