Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Welcoming Crystal Kostick to the Board of Directors

Welcoming Crystal Kostick to the Board of Directors

March 8th, 2021  | Advocacy

We are excited to announce that Crystal Kostick has joined the Hope for HIE Board of Directors. As a long time “super volunteer” at Hope, Crystal has been a member of the retreat planning committee, has served as a moderator of our Colorado subgroup, attended the 2019 Child Neurology Foundation Peer-to-Peer Support Training representing the organization, and has worked to […]

It’s time to Hustle for Hope

It’s time to Hustle for Hope

March 4th, 2021  | Advocacy  | Fundraising

We are hosting our 2nd annual Hustle for Hope 5K event for our worldwide community! This April, take part in the largest virtual event for HIE Awareness. Grab some friends and family, safely gather to complete the 5K by yourself or with a group, get some fun swag and promote HIE awareness.

Cerebral Palsy Awareness Month

Cerebral Palsy Awareness Month

February 28th, 2021  | Advocacy  | Cerebral Palsy

March is Cerebral Palsy Awareness Month

Cerebral palsy is one of the more common diagnoses from HIE. While HIE-acquired cerebral palsy only accounts for roughly 10-15% of all cerebral palsy causes, roughly 40% of children diagnosed with HIE will go on to be diagnosed with cerebral palsy.

We are sharing all about the connection between HIE and cerebral palsy during March, and sharing resources for our community to learn more.

Fulfilling our mission

Fulfilling our mission

October 1st, 2017  | Advocacy  |  By ANN GOELLER

Part of our mission at Hope for HIE is advocating for our community in many ways. Last year, we worked with an amazing group of researchers at Neobrain in Canada on an educational video for parents in the NICU, whose child had suffered an HIE event and their baby was set to go through cooling. Now, we are teaming up […]

About Tagging Me in That Post…

About Tagging Me in That Post…

October 22nd, 2015  | Advocacy  | Care  | HIE Education  | Special Needs  |  By KARISSA SHEPHERD

A few months ago, a post made the rounds about a boy with Cerebral Palsy completing a triathlon. What a wonderful achievement for that boy to complete such an intensely physical feat, seemingly against the odds! But with the sharing of that video, came the onslaught of beautiful, well-meaning friends who kept tagging me on that photo and sharing the […]

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