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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Healthcare Equity & Access Statement

Healthcare Equity & Access Statement

June 27th, 2022  | Advocacy  | News

As a global patient advocacy organization working to improve the quality of life for children and families impacted by neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy, many who have lifelong disabilities, and based out of the United States, we want to share the concern many families have raised in regards to the United States Supreme Court decision to overturn the long-standing […]

April is HIE Awareness Month

April is HIE Awareness Month

April 6th, 2022  | Advocacy  | News

During the month of April, Hope for HIE will be championing the HIE Awareness Month campaign online, and regionally, to promote awareness, education and, most importantly, support. Two to three of every 1,000 live births are impacted by Hypoxic Ischemic Encephalopathy, or HIE, a type of brain injury. More sustain an HIE injury after birth, due to multiple reasons, including near […]

March is Cerebral Palsy Awareness Month

March is Cerebral Palsy Awareness Month

March 1st, 2022  | Advocacy  | Cerebral Palsy  | News

March is Cerebral Palsy Awareness Month

Cerebral palsy is one of the more common diagnoses from HIE. While HIE-acquired cerebral palsy only accounts for roughly 10-15% of all cerebral palsy causes, roughly 40% of children diagnosed with HIE will go on to be diagnosed with cerebral palsy.

We are sharing all about the connection between HIE and cerebral palsy during March, and sharing resources for our community to learn more.

Seizure Action Plan Awareness Week

Seizure Action Plan Awareness Week

February 15th, 2022  | Advocacy  | Epilepsy  | News

Epilepsy is one of the largest impacts from HIE, Hypoxic Ischemic Encephalopathy. Children across all outcomes can develop epilepsy, and HIE is a leading cause of several rare types of epilepsy such as Infantile Spasms, Lennox-Gastaut Syndrome, and ESES. Since seizures and HIE are so common, we recommend all families learn more about Seizure Action Plans, and go through Seizure First Aid training. Hope for HIE also supports all legislative efforts to improve the prevalence of Seizure Action Plans and Seizure First Aid through the Seizure Safe School campaign through the Epilepsy Foundation.

Neonatal Seizure Registry: New study findings, resources for families, and more

Neonatal Seizure Registry: New study findings, resources for families, and more

February 15th, 2022  | Advocacy  | News  |  By Emma Scudero, Neonatal Seizure Registry

Thanks to participation of families from across the USA, we are pleased to report that the results from our latest Neonatal Seizure Registry study have been published in a top journal! We learned that, for children experiencing acute provoked neonatal seizures (i.e., due to brain injury), in most cases stopping anti-seizure medicine before a child goes home is safe. This […]

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