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We are excited to announce that Crystal Kostick has joined the Hope for HIE Board of Directors. As a long time “super volunteer” at Hope, Crystal has been a member of the retreat planning committee, has served as a moderator of our Colorado subgroup, attended the 2019 Child Neurology Foundation Peer-to-Peer Support Training representing the organization, and has worked to […]
We are hosting our 2nd annual Hustle for Hope 5K event for our worldwide community! This April, take part in the largest virtual event for HIE Awareness. Grab some friends and family, safely gather to complete the 5K by yourself or with a group, get some fun swag and promote HIE awareness.
Cerebral palsy is one of the more common diagnoses from HIE. While HIE-acquired cerebral palsy only accounts for roughly 10-15% of all cerebral palsy causes, roughly 40% of children diagnosed with HIE will go on to be diagnosed with cerebral palsy.
We are sharing all about the connection between HIE and cerebral palsy during March, and sharing resources for our community to learn more.
Part of our mission at Hope for HIE is advocating for our community in many ways. Last year, we worked with an amazing group of researchers at Neobrain in Canada on an educational video for parents in the NICU, whose child had suffered an HIE event and their baby was set to go through cooling. Now, we are teaming up […]
A few months ago, a post made the rounds about a boy with Cerebral Palsy completing a triathlon. What a wonderful achievement for that boy to complete such an intensely physical feat, seemingly against the odds! But with the sharing of that video, came the onslaught of beautiful, well-meaning friends who kept tagging me on that photo and sharing the […]
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