Epilepsy is one of the largest impacts from HIE, Hypoxic Ischemic Encephalopathy. Children across all outcomes can develop epilepsy, and HIE is a leading cause of several rare types of epilepsy such as Infantile Spasms, Lennox-Gastaut Syndrome, and ESES. Since seizures and HIE are so common, we recommend all families learn more about Seizure Action Plans, and go through Seizure First Aid training. Hope for HIE also supports all legislative efforts to improve the prevalence of Seizure Action Plans and Seizure First Aid through the Seizure Safe School campaign through the Epilepsy Foundation.
Thanks to participation of families from across the USA, we are pleased to report that the results from our latest Neonatal Seizure Registry study have been published in a top journal! We learned that, for children experiencing acute provoked neonatal seizures (i.e., due to brain injury), in most cases stopping anti-seizure medicine before a child goes home is safe. This […]
Join us as David Ford, president of Hope for HIE’s board of directors, shares his HIE story, his calling to give back to Hope for HIE, and encouragement for others to get involved in a myriad of ways as the giving season begins. Learn how to get started with Giving Tuesday, Hope for HIE’s 100 for $100 campaign, and the […]
Every September, we come together with hundreds of other support organizations, partners, and professionals to recognize NICU Awareness Month. We work to share stories of our community, and focus on advocacy to improve care, communication and connection for our HIE families. Historically, the NICU has been painted as just a place where premature infants go, but we know that half […]
We are so grateful to continue collaborating with the Child Neurology Foundation, and the section on HIE is now live! This will continue to generate more awareness and connect families for support to our organizational offerings. Child Neurology Foundation – Hypoxic Ischemic Encephalopathy
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
