Today is Global Accessibility Awareness Day (GAAD), a day marked by spreading awareness and promoting digital access and inclusion for the over 1 billion people worldwide with impairments or disabilities. Now more than ever, when there is such an increased reliance on technology for daily living, it is essential that we think about ways to make digital resources accessible to […]
Access to mental health support and resources is critically important for families who find themselves in the NICU and PICU. Parents whose children are admitted to the NICU or PICU have a 45-50% greater incidence of mental health disorders such as PTSD, Anxiety & Depression. There also remains significant inequity for non-white families in the NICU, and non-preemie families in […]
We are excited to announce that Crystal Kostick has joined the Hope for HIE Board of Directors. As a long time “super volunteer” at Hope, Crystal has been a member of the retreat planning committee, has served as a moderator of our Colorado subgroup, attended the 2019 Child Neurology Foundation Peer-to-Peer Support Training representing the organization, and has worked to […]
We are hosting our 2nd annual Hustle for Hope 5K event for our worldwide community! This April, take part in the largest virtual event for HIE Awareness. Grab some friends and family, safely gather to complete the 5K by yourself or with a group, get some fun swag and promote HIE awareness.
Cerebral palsy is one of the more common diagnoses from HIE. While HIE-acquired cerebral palsy only accounts for roughly 10-15% of all cerebral palsy causes, roughly 40% of children diagnosed with HIE will go on to be diagnosed with cerebral palsy.
We are sharing all about the connection between HIE and cerebral palsy during March, and sharing resources for our community to learn more.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
