We don’t know about you, but we think it’s time to recognize, celebrate, and empower the unsung HIEroes of the HIE community — the brothers and sisters who stand strong alongside their HIE siblings and those they remember who have passed. Sometimes, our Super Sibs can bear a significant load: they are asked to take on a lot, go forth […]
Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.
When your child needs an EEG, it’s completely normal for them to feel anxious. The unfamiliar equipment, the idea of having electrodes attached to their head, and the pressure to stay still can all be a lot to handle. That’s why prepping for the procedure through pretend play or role-playing is such a helpful tool. By making the process more […]
We all know that friendships can be tough to navigate, and for children within our Hope community, there are often more challenges to consider: differences in communication styles, physical abilities, sensory sensitivities, or emotional regulation can all influence how they (and their siblings) connect with their peers. So, how can parents and caregivers help their children build meaningful friendships in […]
If we were to ask any parent, family member, or caregiver in our community how important it is to provide proper support for siblings of children with medical complexity, you can bet we’d get an emphatic “VERY!” as their reply. We know this support is important, but do we really know why? As it turns out, researchers have been collecting […]
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