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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Family Stories

Growing as a parent

Growing as a parent

April 25th, 2018  | Family Stories  |  By ANN GOELLER

A motto of so many of our HIE families is that hope is in the journey. For Gabrielle Shimkus, finding that hope has been a process over the last two years since her daughter Harper, the last of five children, suffered HIE at birth. In the beginning, Gabrielle had so many fears and preconceived notions of what life would be […]

Jersey shore adventures

Jersey shore adventures

April 19th, 2018  | Family Stories  |  By ANN GOELLER

HIE didn’t stop them from trips to the beach, visiting family miles away and the Jersey shore vacations they had envisioned taking as a family. And after losing their son Jacob, Dawn Carofine cherishes those memories. “The memories we made are just another way to keep Jacob’s memory alive. I’m not able to see the ocean without thinking about him. […]

Adventures as a family

Adventures as a family

April 18th, 2018  | Family Stories  |  By EMILY COMBS

HIE hasn’t stopped this adventurous family from exploring and enjoying their world together. Two-year-old Connor May and his parents, Rhea and Johnny, live in the foothills overlooking Denver, Colorado – and they take full advantage of the adventures awaiting them in their own backyard and beyond. From mountains to music festivals, Connor is already quite a daring little man. Along […]

The adventure of having another baby

The adventure of having another baby

April 17th, 2018  | Family Stories  |  By ANN GOELLER

After the traumatic birth of her daughter, Brittany Bemourtrusting was terrified to think about going through pregnancy again. But it was an adventure she had wanted her whole life. Brittany’s daughter Dreaven suffered HIE at birth, leading to a NICU stay and a big change in how their family had expected parenthood. When their daughter was young, Brittany wasn’t sure […]

Visiting her village

Visiting her village

April 12th, 2018  | Family Stories  |  By ANN GOELLER

Making the trip from Tanzania to Kenya to visit the village where Eleanor Shiru Wanjiru Muigai-Mnaro grew up was important to her. The adventure would allow her 1-year-old son Malik to meet his 99-year-old great grandfather and see the village where his mother lived for 11 years, she said. “It was also a chance for him to enjoy the little […]

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