You don’t want to be me. And I get it. There was a time I didn’t want to be me either. I was terrified that my baby girl wouldn’t “beat the odds” or “defy the doctors.” I wanted to believe that she would “prove all those specialists wrong,” the ones who used terms like severely affected and cerebral palsy. I […]
Two little boys with the same name and an HIE diagnosis were born days apart, but thousands of miles apart. Once their parents met through Hope for HIE, those miles weren’t going to stop them from bonding and eventually meeting in person. Valerie, who lives in the U.S., and Tabbi, who lives in Australia, met through the Hope for HIE […]
My Life as a Fraud (Posted on behalf of the original author anonymously) Most of my life I wore my heart on my sleeve. I was an open book and comfortable being authentic. I had two degrees and a successful marketing career. I made friends easily and was blissfully confident in myself and my abilities. I had always worked hard, […]
Her first set of wheels! Emersyn has been so excited about getting her wheelchair, she has been telling anyone and everyone within ear shot. The truth is we all have ideas about “disability” and what it means to be “disabled.” What are your first thoughts when you see a person in a wheelchair? What about when that person is a […]
With her son in the NICU, Margaret Stuart stumbled across her new support network while searching for any information she could find about HIE. Margaret’s son, Merritt, suffered HIE at birth and has since been diagnosed with cerebral palsy, and has a charming personality that wins everyone over immediately. A Google search turned up Hope for HIE, and Margaret immediately […]
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