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2024 HIE Awareness Month – Transforming Hope

2024 HIE Awareness Month – Transforming Hope

April 1st, 2024  | Advocacy  | News

Welcome to 2024 HIE Awareness Month! We come together every April – families, clinicians, researchers, partners, supporters and others in our global community – to spread awareness into the world about neonatal and childhood acquired Hypoxic Ischemic Encephalopathy. This year, the community theme is TRANSFORMING HOPE. Our community is over 10,000 families, researchers, clinicians, and community members strong, across all ages and […]

What is “Baseline”?

What is “Baseline”?

March 21st, 2024  | Advocacy  | Care  | News

Hypoxic-ischemic encephalopathy (HIE) is a condition that affects infants and children with many causes due to reduced oxygen supply before, during or after birth, and in childhood, leading to potential neurological challenges. One crucial aspect of managing HIE in children is understanding their baseline, which refers to their typical level of functioning or development. This concept plays an important role […]

HIE and Kidney Impacts: Q&A with Dr. Matthew Harer

HIE and Kidney Impacts: Q&A with Dr. Matthew Harer

March 21st, 2024  | HIE Education  | News  | Resources

When you think about the different impacts of HIE, your mind may jump to more well-known conditions like epilepsy or cerebral palsy. But here’s something you might not have heard: around 30 to 50 percent of newborns with moderate to severe HIE might also experience Acute Kidney Injury (AKI) in their early days. And for some of them, there’s a […]

Sleep Issues in HIE: Give Your Input for Research

Sleep Issues in HIE: Give Your Input for Research

March 20th, 2024  | News  | Sleep

Survey link: Tinyurl.com/HIESleep We’ve heard from thousands of families that sleep issues are one of the TOP unmet needs of our community, and across all outcomes and impacts, impacting the entire family. NOW IS YOUR CHANCE TO BE HEARD & DRIVE RESEARCH!!! We are a part of a research proposal to explore sleep issues with HIE, beginning in the NICU […]

March is Cerebral Palsy Awareness Month

March is Cerebral Palsy Awareness Month

March 12th, 2024  | Advocacy  | Cerebral Palsy  | News

March is Cerebral Palsy Awareness Month

Cerebral palsy is one of the more common diagnoses from HIE. While HIE-acquired cerebral palsy only accounts for roughly 10-15% of all cerebral palsy causes, roughly 40% of children diagnosed with HIE will go on to be diagnosed with cerebral palsy.

We are sharing all about the connection between HIE and cerebral palsy during March, and sharing resources for our community to learn more.

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