Navigating Life with HIE and Epilepsy: Building Your Care Team Living with hypoxic-ischemic encephalopathy (HIE) and epilepsy can feel overwhelming, both for the individuals affected and their families. These conditions present unique challenges and often require a broad, skilled care team to ensure that the individual gets comprehensive support. In this post, we’ll outline key care team members who can […]
Genetic research in HIE is still in its early stages, but it’s opening the door to potentially transformative advances in both prenatal and postnatal care. And while it may not have all of the answers yet, its insights are building a foundation for supporting HIE families in the future – potentially offering explanations, guiding care, and paving the way for […]
In the world of Hope for HIE, we believe in the power of community, the strength of unity, and the unwavering resilience of families navigating the challenges of neonatal and pediatric-acquired HIE. And what better way to embody these principles than becoming a 2025 Hustle for Hope 5K Host? We’ve witnessed the profound impact of our 5K fundraiser on our […]
Hypoxic-ischemic encephalopathy (HIE) is a critical condition in newborns resulting from reduced oxygen or blood flow to the brain. This shortage can lead to brain injury, with a range of outcomes depending on severity, timing, and the interventions available. One of the major complications associated with HIE is neonatal seizures, which can contribute significantly to long-term outcomes for affected infants. […]
When it comes to epilepsy, we know there’s a lot to take in. It’s normal to feel overwhelmed by all of the terms and information, from understanding the different types of seizures to learning about treatments and unique considerations for children. So, whether you’re just beginning your epilepsy journey or looking to build your knowledge, here’s an A-Z breakdown of […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
