We’re thrilled to reintroduce the 2025 SOAR program—now new and improved with a fully online experience through our Canvas platform! SOAR is a unique initiative designed to support children as they grow into their lives with HIE, helping them feel seen, supported, and connected. Developed by Annie Gunning, Hope for HIE’s certified Child Life Specialist, SOAR was created in response […]
Medical procedures can be overwhelming, especially for kids. But what if there was a simple way to make those moments feel less scary and much more manageable? That’s where comfort positions come in—they’re a small change that can give them enough security and support to shift stressful situations into moments of comfort and care. We met with Annie Gunning, CCLS, […]
Supporting siblings of children with HIE or medical complexities can feel like walking a tightrope. You want to ensure they feel included, understood, and supported, but with so much focus on medical care, it’s easy to wonder if you’re doing enough. You’re not alone in this—so many parents in our community have the same questions and concerns. That’s why we […]
We don’t know about you, but we think it’s time to recognize, celebrate, and empower the unsung HIEroes of the HIE community — the brothers and sisters who stand strong alongside their HIE siblings and those they remember who have passed. Sometimes, our Super Sibs can bear a significant load: they are asked to take on a lot, go forth […]
Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.
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