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- HIElights of Hope
As we embrace the holiday season’s warmth, joy, and gratitude, we focus on remembering those facing challenges, especially families navigating through neonatal or pediatric-acquired Hypoxic Ischemic Encephalopathy (HIE). This season, let’s extend our generosity and support to Hope for HIE, a beacon of hope for families affected by this condition.
By volunteering, donating, and spreading awareness, we can ensure that no family faces HIE alone.
Hope for HIE is the premiere patient advocacy and support organization dedicated to decreasing the incidence and impact of HIE, globally. We provide a range of programs, services, educational resources, and advocacy initiatives aimed at improving the lives of those affected.
There are multiple ways to make a difference. Whether you choose to donate, fundraise, volunteer, or simply spread awareness, your involvement paves the way for an improved quality of life for families impacted by HIE.
Your time and effort can make a significant impact. Volunteers play a crucial role in organizing events, supporting families, and spreading awareness. Consider volunteering for Hope for HIE and contribute to our mission! We are actively recruiting for 2024 Hustle for Hope in-person event hosts!
Your financial contributions can help fund essential programs and research initiatives. Even a small donation can make a meaningful difference in the lives of families affected by HIE.
Share your personal connection to Hope for HIE by sharing information about HIE and Hope for HIE’s initiatives on social media, in your community, or through fundraising events. Spreading awareness is vital in ensuring families receive the support they need.
Your generosity fuels research, education, support networks, and advocacy, making a meaningful impact on our collective journey toward hope and healing. Click on each photo to learn more.
FAMILY SUPPORT PROGRAMS
Hope for HIE offers support services catering to families’ emotional, informational, and practical needs. These include support groups, mentorship programs, and counseling services provided by credentialed staff. Hope for HIE employs a licensed social worker and a certified child life specialist wholly dedicated to supporting families across all outcomes, impacts, and locations.
We provide a wealth of evidence-based, scientifically sound educational materials in conjunction with our multidisciplinary Medical Advisory Board through blogs, videos, and guides to help families understand HIE better, navigate treatments, and advocate for their loved ones. We are on a mission to build health literacy in our global community, working towards all information accessible and available in first languages.
ADVOCACY AND RESEARCH INITIATIVES
Hope for HIE is the leader in advancing advocacy efforts for the unmet needs of the global HIE community. In addition, we are actively advancing clinical trials and research studies focused on new treatments, with the ultimate goal of improving outcomes for individuals with HIE.
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