Survey link: Tinyurl.com/HIESleep
We’ve heard from thousands of families that sleep issues are one of the TOP unmet needs of our community, and across all outcomes and impacts, impacting the entire family.
NOW IS YOUR CHANCE TO BE HEARD & DRIVE RESEARCH!!!
We are a part of a research proposal to explore sleep issues with HIE, beginning in the NICU and following children the first couple of years of life.
YOU get to share what matters most to you in research, what areas to focus on, and your experiences with sleep issues and HIE!
It’s a SHORT survey to get started… and we need as many families as we can, no matter where you live in the world, to drive patient-family input and get this study planning started!
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