A few months ago, a post made the rounds about a boy with Cerebral Palsy completing a triathlon. What a wonderful achievement for that boy to complete such an intensely physical feat, seemingly against the odds! But with the sharing of that video, came the onslaught of beautiful, well-meaning friends who kept tagging me on that photo and sharing the […]
Life can be pretty overwhelming when your precious child receives the diagnosis of hypoxic ischemic encephalopathy (HIE). Your hopes and dreams of motherhood shift, and your life is intensely focused on therapies, doctor appointments and research. You wonder how people are able not only to attend all of these appointments, but also manage to implement the slew of home programs that occupational, physical […]
What should’ve been A dream unfulfilled, but forever imagined So unextrordinary a fantasy, unrealized Should’ve been What never was Bonding time and cord cutting A wheelchair ride and balloons A clever announcement with rustic font Never was What was Barely saved, Mama shaking Just met, say goodbye for ambulance trip Signing forms and breaking down Papa yells at strangers to […]
Firefly makes multiple excellent products for children who struggle with mobility or seating. For some children, the GoTo seat has been a great fit. For our little one, it doesn’t work in all situations because of her low trunk control and head support. We have the size 2. If the seat our daughter is in can recline, it works well. […]
This compact high chair was a lifesaver for us when our daughter was smaller. We used it for positioning, feeding and therapy. The size of the chair is great, because it is very portable and easily straps onto a typical chair. We used this often when we went out to eat or to visit friends. The seat itself works great […]
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