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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Three Sleeps

Three Sleeps

December 4th, 2015  | Family Stories  |  By MARISSA DANIELLE

In the summer of 2014, I attended a writers’ workshop at The Mazza Institute at The University of Findlay, in Ohio. My mother, a retired school librarian, has gone to these children’s literature conferences for roughly 25 years. She has encouraged me to go several times, and finally, I made the time. She has been my biggest fan, always referring […]

Giving Back through Heartbreak

Giving Back through Heartbreak

December 2nd, 2015  | Family Stories  |  By ANN GOELLER

Her little girl in the NICU was the biggest baby there — far bigger than the preemies in the other beds — but Zoe was also the sickest. Zoe had been resuscitated and placed on a cooling mat after she was born. She had suffered extensive brain damage, her mother Nina Young said. “I couldn’t find anyone like me, the […]

Finding Hope in the Dark

Finding Hope in the Dark

November 30th, 2015  | Give Hope  |  By ANN GOELLER

Before she found a group of families whose children also were affected by HIE, Emmy Heaton felt alone. She had joined other online groups, including one for children who had been cooled at birth, but many of the children there were mostly unaffected. Emmy’s son, Aj, who is now 3, was initially given a very grim prognosis. Since then, he […]

Baby Grey’s Story

Baby Grey’s Story

November 24th, 2015  | Give Hope  |  By ANN GOELLER

With his baby boy in a NICU bed, Nick Burton knew what had physically happened to his son at birth, but he kept hearing three letters from the doctors: HIE. Nick knew baby Grey had aspirated meconium at birth, had to be intubated and then was sent to special NICU for head cooling. He also knew Grey’s heart was damaged […]

Fall Sensory Fun for Everyone

Fall Sensory Fun for Everyone

October 27th, 2015  | Sensory  | Therapy  |  By CLARISSA STUCKENBERG

Are you looking for a fun Fall craft that is doable for any ability, mess-free, and festive?  My son Huxley and I found a great way to make some fun decorations using a pumpkin shape cut out of construction paper, a little plastic wrap, some blobs of paint and some tape. I laid the pumpkin on top of plastic wrap, added […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

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