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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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The powerful connection of HIE babies and their parents

The powerful connection of HIE babies and their parents

January 23rd, 2022  | Family Stories  | News  |  By Evan Pullano

This was the very first picture of Aiden we took. At the time he was intubated on life support, had IV lines with multiple drugs pumped into his system, placed under heavy sedation, and was on a cooling blanket being cooled into hypothermia to slow the metabolizing of his brain from the Hypoxic event in order to try and reduce […]

The Day After: 10 Years Later

The Day After: 10 Years Later

January 14th, 2022  | Cerebral Palsy  | Family Stories  | News  |  By Andy Chrestman

This day ten years ago was not a good day. At some point in the wee hours of that morning, about eight hours after Kohl was born, we were abruptly awoken by the resident on call. She had the misfortune to inform us that Kohl started having seizures, had to be intubated and would need to be transported to our […]

Child Life Podcast Episode: Spotlight on HIE

Child Life Podcast Episode: Spotlight on HIE

January 12th, 2022  | Family Stories  | News

Katie Taylor, CEO of Child Life On Call & Podcast, highlighted the HIE parent experience in a recent interview with Betsy Pilon, Executive Director. You can listen below, or where you listen to your favorite podcast:

“As long as my baby is born healthy”

“As long as my baby is born healthy”

November 18th, 2021  | Family Stories  | News

A PICU Journey with HIE – by Amy Bannister DiGiacomo Expectant parents say this all the time. I probably said it too, until my second child, Oliver, was born. Now the phrase hits me in the chest when I hear it. Oliver’s birth was fine until it wasn’t. When he was four days old, he stopped breathing in my arms […]

Just Say HIE: Support Across the Miles

Just Say HIE: Support Across the Miles

November 8th, 2021  | Family Stories  | News

Join us as we share the stories of Julie Makow and Margie Jones, two HIE moms, who connected through Hope for HIE on the road to kidney transplants for their children. With acute kidney injury and HIE, many children may have impacted kidney function. While Julie and Margie did not leave near each other, through Hope for HIE, they were […]

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