Every time someone posts in the Hope for HIE groups about daring to do hard things and going out of their comfort zone to find “Hope in the journey“, it always inspires me. So, this week we took a 9 day road trip across 3 states, to 5 National Parks, some state parks, and National Forests. THIS IS WHAT HOPE […]
Carve a path for your child. Carve a path for your family. Carve a path for you. Don’t quit because things look different. Take it slow, remember to breathe, laugh at yourself while doing it, and most of all…have fun. Let others ask questions and stare. We found that most just want to help […]
For the bereaved fathers. A reflection on Nick, from Sara. Nic is a wonderful dad to every child God has blessed our family with, whether it be for one day or a lifetime, but it has always been a decision as parents for each one. Ansley, though…one day he came home from work and I told him, “We have a […]
Join us as we interview Shiru Wanjiru to learn more about her HIE story and connection, finding support, ideas for advocacy, and the need for collaboration to improve access to equipment in areas of disparity. Learn about the nuances of her journey and the connections that have helped her advocate for cultural change and the reduction of stigma surrounding disability. […]
April is HIE awareness month – and one of the daily themes is about Capturing HOPE. Connor experienced a lack of oxygen sometime during delivery – it was nobody’s fault – honestly it happens more than you think. For Connor, the brain damage resulted in Cerebral Palsy that affects motor control of his body. Hope for HIE is a nonprofit […]
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