Meet Tanya MacNeil, one of our HIE Awareness Ambassadors from Eastern Passage, Canada! What is your story and connection with HIE? Beatrix suffered HIE at birth, she ended up in the NICU for a month. She was the sickest kiddo there, and we were repeatedly told there was no hope. When we refused to withdraw care, they offered the […]
What is a Super Sib? It’s a sibling to a baby or child with HIE – Hypoxic Ischemic Encephalopathy, across any outcome or impact. Sometimes our Super Sibs are asked to take on a lot, go with a lot, go without a lot, and work through their own feelings of being a sibling to a child with disabilities, or have […]
For too many kids with HIE, loss in childhood can be an eventual outcome. HIE is incredibly complex, and the parenting journey taking care of children who may have shortened life spans brings unique challenges, with many questions, feelings and decision-making along the way that can feel very isolating. Justin Yan’s daughter, Mila, was born in March 2015 with HIE. […]
Hi. I’m Steve, and what I’m about to share isn’t simply just a pump for an extremely worthy cause because there are so many – it’s an important piece of my life’s puzzle that I want to talk about and yet it’s an issue that’s still shrouded in a lot of mystery, maybe in part due to all of the […]
Beth, mom to Rowan, recently joined the Hope for HIE Parent Support Hub on Facebook. Rowan is three years old and was diagnosed with HIE (hypoxic ischemic encephalopathy) at birth, and with global developmental delay at six months old. “Finding the Hope For HIE group has helped me in so many different ways the past few months. I’ve connected with […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
