fbpx
Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

BLOG

Family Stories

Hope is an adventure – choosing hope and exploring new places

Hope is an adventure – choosing hope and exploring new places

August 9th, 2021  | Family Stories  | News  |  By Shawn P.

Every time someone posts in the Hope for HIE groups about daring to do hard things and going out of their comfort zone to find “Hope in the journey“, it always inspires me. So, this week we took a 9 day road trip across 3 states, to 5 National Parks, some state parks, and National Forests. THIS IS WHAT HOPE […]

Carving a Path for Your Child

Carving a Path for Your Child

June 29th, 2021  | Family Stories  | News  |  By Cindy Muzzi

Carve a path for your child.   Carve a path for your family.   Carve a path for you.   Don’t quit because things look different.   Take it slow, remember to breathe, laugh at yourself while doing it, and most of all…have fun.   Let others ask questions and stare.   We found that most just want to help […]

For the Bereaved Fathers

For the Bereaved Fathers

June 20th, 2021  | Family Stories  |  By Sara Baker Pendleton

For the bereaved fathers. A reflection on Nick, from Sara. Nic is a wonderful dad to every child God has blessed our family with, whether it be for one day or a lifetime, but it has always been a decision as parents for each one. Ansley, though…one day he came home from work and I told him, “We have a […]

Just Say HIE Podcast New Episode – “Connecting with Worldwide Support”

Just Say HIE Podcast New Episode – “Connecting with Worldwide Support”

June 17th, 2021  | Family Stories

Join us as we interview Shiru Wanjiru to learn more about her HIE story and connection, finding support, ideas for advocacy, and the need for collaboration to improve access to equipment in areas of disparity. Learn about the nuances of her journey and the connections that have helped her advocate for cultural change and the reduction of stigma surrounding disability. […]

Finding Intrinsic Hope

Finding Intrinsic Hope

April 9th, 2021  | Family Stories  |  By Rhea May

April is HIE awareness month – and one of the daily themes is about Capturing HOPE. Connor experienced a lack of oxygen sometime during delivery – it was nobody’s fault – honestly it happens more than you think. For Connor, the brain damage resulted in Cerebral Palsy that affects motor control of his body. Hope for HIE is a nonprofit […]

SIGN UP

  • This field is for validation purposes and should be left unchanged.

SIGNUP

Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.

  • This field is for validation purposes and should be left unchanged.