When she had to go through the toughest decisions and emotions in her life, Lauren Macke found support from a group of parents who had been there. Lauren’s son Jonah was born early and went without oxygen for 14 minutes. He was diagnosed with HIE and went through cooling therapy. Testing showed his brain damage was extensive, and Lauren was […]
In the days after their son was born, the news kept getting worse. Baby Cole suffered HIE at birth after getting stuck in the birth canal and aspirating meconium. He was having seizures, he needed emergency cooling treatment hours away from home and tests of his brain activity weren’t looking good. Sara Ames Saltzman felt alone and terrified. She didn’t […]
Throughout our lives, we form communities. Our hometown, our cliques of friends in school, our co-workers, our couples friends and then the families we want our kids to grow up with. I have been a part of some amazing communities in my life. And when my daughter suffered a birth injury, hypoxic ischemic encephalopathy or HIE, I needed another one […]
For one HIE mom, hope has taken her across the country this year. Betsy Pilon, president of the Hope for HIE foundation, has traveled from her home state of Michigan to Texas, New York and New Orleans so far this year, making her slogan for 2016 “Have hope, will travel.” For Betsy, the trips to meet other HIE families at […]
I have been trotting on this path long enough to know that guilt will suck the life force out of you faster than anything. Keeping this in mind, I tend not to spend time in a pit of guilt when it comes to our beautifully complex daughter. However, every so often, there is one question that still finds its way […]
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