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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Healing in motion

Healing in motion

September 26th, 2016  | Family Stories  |  By BECKY KERRINS

HIE mom Becky Kerrins shares her story of how she embarked on her latest journey, Healing in Motion, and what it means to see other parents joining her. ——————————————- I got the idea for healing in motion one day while in kickboxing. I was thinking: how can I make my workouts more meaningful and keep myself motivated? I have been […]

Always my family

Always my family

August 17th, 2016  | Family Stories  |  By AZIZIAH AZIZ

My HIE survivor (now angel) was Aafiyah, which in Arabic means health. My uterus and bladder ruptured during labor, which resulted in her severe HIE. She was born not breathing, and doctors quickly revived. I remember kissing her before she was rushed off to the NICU, and then I was put to sleep for the remainder of my surgery. The […]

For the new moms

For the new moms

August 13th, 2016  | Family Stories  |  By ANN GOELLER

To new moms: This picture popped up on my news feed. It’s a picture of my then 2 month old HIE son GMO; God’s Miracle On earth – GianRaul. He is now 4 years old. This picture was taken only days after we returned home from 1 month in the NICU and another month in a rehabilitation hospital. As I look […]

Having a child after HIE

Having a child after HIE

July 31st, 2016  | Family Stories  |  By AMY CUTLER

I always knew that I want to be a mom. I was lucky enough to grow up with two sisters and understood how important siblings are. After we got married, we waited a little bit of time before deciding that we wanted to begin our family and our journey to becoming parents. It was certainly not an easy one from […]

What I have learned: one year in

What I have learned: one year in

July 30th, 2016  | Family Stories  |  By NICOLETTE FRIEND

Faith is now 13 months old, and I wanted to put together some of “what we’ve learned” to share with you. She’s currently admitted for the 7th time since our 2 month NICU stay, which has given me the time to get this together. Faith is pretty severely affected and will probably be my forever baby. But regardless of future […]

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