After her son was born, Betsy Pilon left the NICU with a diagnosis of HIE, two pamphlets and the dreaded words of “wait and see” ringing in her headed. Her son Max was born via emergency C-section after he stopped moving at 37 weeks and for five days was on a ventilator and was treated with the cooling protocol. Now, […]
After her son was diagnosed with HIE, Jill Uswajesdakul wanted to find other families like hers that she could connect with. But when she asked about any groups or organizations that existed, no one knew of any. She doesn’t want other families to have that experience. “Just someone to say ‘I’ve been there too,’ and there was nothing. It was […]
When Karissa Shepherd’s son was born and she saw the words Hypoxic Ischemic Encephalopathy in his records, she turned to the internet. The Australian mom found a small Yahoo support group and a blog by one of the Hope for HIE founders. When a Facebook group formed, Karissa was one of the first members. Karissa learned early on that her […]
Australian mom Claire Greer is one of the co-founders of Hope for HIE, which grew out of the vision of a few moms who wanted to help parents of children with HIE, or Hypoxic Ischemic Encephalopathy, connect. She shares her HIE story and how she has found hope in her journey. Tell us about your little one with HIE, from […]
Over the next month, we will be sharing stories of families affected by HIE with one main focus: finding hope in the journey. We would love to hear your story! Contact us and tell us how you have found hope in your journey with HIE.
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