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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Feeling at home

Feeling at home

April 25th, 2016  | Family Stories  |  By ANN GOELLER

After her son was born, Lindsay Vanzandt just wanted answers. She found medical journals, with tons of terms she didn’t understand. And then she found Hope for HIE, and so many other families just like hers. “We immediately felt at home in the Facebook group, where we got more answers and more hope than we did at the hospital,” she […]

Making a connection

Making a connection

April 25th, 2016  | Family Stories  |  By ANN GOELLER

After her daughter was born, Megan Ross was desperate for answers. But all the doctors could tell her was that little Cari started having seizures 15 hours after birth due to suffering a loss of oxygen at some point before or during birth. They had no idea what their future would hold. “No doctor could tell us what she would […]

Finding a purpose

Finding a purpose

April 22nd, 2016  | Family Stories  |  By ANNIE GOELLER

Above the grief, the worry and the exhaustion, the loneliness was one of the strongest feelings. For months, the words of doctors in the NICU rang in her head: “HIE is rare.” All Annie Goeller could feel was alone. Annie’s daughter suffered HIE at birth. Five years later, she has a slew of other diagnoses, including spastic quad cerebral palsy, […]

Remembering Will

Remembering Will

April 20th, 2016  | Family Stories  |  By ANN GOELLER

His blue eyes lit up the room and his smile, though rare, was beautiful.   His life on earth was not long enough, but in his 17 months, baby Will touched so many lives, his mother Tara Oliver said.   Will suffered HIE after his mother’s splenic artery ruptured when she was pregnant, causing massive internal bleeding. Will was later […]

Finding the missing piece

Finding the missing piece

April 18th, 2016  | Family Stories

For 7 years, Keira Chilvers had no idea other families were going through what she was with her son Zane. Zane, who is now 12, suffered HIE at birth. After a rough start in the NICU, he was sent home and several diagnoses came in the years after, including epilepsy, cortical vision impairment, diplegia cerebral palsy, microcephaly, scoliosis and thermo […]

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