Hope for HIE was selected as a pilot partner in the new Neurology Social Services Network program between the Child Neurology Foundation and Unite Us. Unite Us is the nation’s leading technology company connecting health and social care services. Intended to fill a gap reported by families in the Child Neurology Foundation’s network, this partnership is a coordinated effort to […]
Beth, mom to Rowan, recently joined the Hope for HIE Parent Support Hub on Facebook. Rowan is three years old and was diagnosed with HIE (hypoxic ischemic encephalopathy) at birth, and with global developmental delay at six months old. “Finding the Hope For HIE group has helped me in so many different ways the past few months. I’ve connected with […]
Hope for HIE is pleased to share the first cohort of the Peer Support Mentor program launching this month. As a part of the outgrowth of Hope for HIE’s support programs, Vanessa Zinke, LCSW, has been diligently working to launch a 1:1 peer support mentorship program for HIE families who are either new to HIE, or new to loss from […]
HOPE INSPIRES SUPPORT Megan C. reached out to Hope for HIE with an idea — to help families during a joyous and tough time feel supported and loved by starting a birthday card program. We assembled a team of volunteers who have been sending out cards to our HIE community families that kicked off earlier this year. Volunteers were stocked […]
Our precious son Scout was born August 3rd, 2021 by emergency cesarean after a failed induction. To our shock, he was born with no heart beat. Our medical team revived him after 15 minutes of CPR and three rounds of EPI. We were quickly warned that his outcome would be unknown. As I went to recovery, Scout went up to […]
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