At Hope for HIE, we receive many requests from our community members for more ways to get involved. Well, we are here to deliver on that request! As we continue to grow and create educational resources that help bridge the gap between the hospital and home, we need volunteers who have the skill set to translate these resources into various […]
Understanding seizures and epilepsy can be daunting, but it’s easier when we have a notable pediatric neurologist like Dr. Alexa Craig from Maine Medical Center to educate and guide us! If you couldn’t attend her live Q&A, there is no need to worry. We took notes, and like any good partner, we’re willing to share! Here are nine key takeaways: […]
Hope for HIE is excited to announce the addition of Deanna Bryan to the organization as Program Manager. Deanna brings an extensive background in education, consulting and training to the role. In her role, she is responsible for managing many of Hope for HIE’s outreach programs, events and educational content. She will also be helping the organization move forward its […]
As a global patient advocacy organization working to improve the quality of life for children and families impacted by neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy, many who have lifelong disabilities, and based out of the United States, we want to share the concern many families have raised in regards to the United States Supreme Court decision to overturn the long-standing […]
EEGs can be very stressful to prepare for, live with, and clean up the literal mess they cause. But, with so many families going through them with their children, we’ve assembled the best advice, and some links from other vetted medical organizations to help you out. What is an EEG and why would my child get one? EEG (Electroencephalogram) is […]
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