Some say it’s a grief journey, some say it’s through trauma… the journey with HIE is like no other. It is a multi-layered and complex journey that weaves grief, trauma, adaptation, and other ways to pick apart the experience in the most unexpected, heartbreaking, hopeful, and unimaginable ways. Recently, we were introduced to Nancy B. Miller’s adaptation stages, and so […]
In continually planning out organizational leadership, we are looking to learn the talents of our community, and those that may be interested in serving the organization on our Board of Directors lending various areas of expertise. Hope for HIE’s Board of Directors has a long standing tradition of being made of HIE parents to guide the growth of our organization. […]
As we work to improve care, communication and connection for families facing HIE in the NICU, we are excited to share that we are expanding our reach by sharing access to our educational materials and support connections for HIE families through Families Bridges to Caring Hands. About Families Bridges to Caring Hands Families’ Bridge to Caring Hands ® is designed […]
Every time someone posts in the Hope for HIE groups about daring to do hard things and going out of their comfort zone to find “Hope in the journey“, it always inspires me. So, this week we took a 9 day road trip across 3 states, to 5 National Parks, some state parks, and National Forests. THIS IS WHAT HOPE […]
Join us as we turn the tables and interview the hosts of the widely popular INCUBATOR podcast, Dr. Ben Courchia and Dr. Daphna Yasova Barbeau. We were excited to come together to showcase the parent and clinician perspectives in this collaboration, learning how each physician approaches care, communication and connection in the NICU, how they prevent burnout, process difficult cases, […]
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